My beautiful sister Nelle Morgan Hands was born May 20th 2000 with a congenital heart condition called Di George Syndrome.
She had multiple things wrong with her heart, including an over riding aorta ( which reduces the amount of oxygen in the blood), and Pulmonary atresia with MAPCAS (which is complete obstruction of the Pulmonary artery, resulting in total diversion of blood).At just 11 days old Nelle was moved from the Special Care Baby Unit at the RVI to ward 23 at The Freeman Hospital, where scans were done on her heart. She also had a low immune system which resulted in her having Septicemia which she came through. Nelle was fed through a tube as she could not swallow, her first was placed in her nose, but as she got older she was fitted with a peg which fed her through her stomach. She went through two heart operations, her first at just a few months old, and her second aged just one and a half. Only one week after her second operation my Mam and Dad were told they could take her home. But after just one day at home she was sent straight back to ward 23 as her lungs had filled with fluid and so she needed them drained. After two long weeks recovering she was allowed back home with her family and told she didnt have to go back! 
On New Years Eve 2002 we were at a family party where Nelle had so much fun, she was laughing, dancing and pretty much the centre of everyones attention (as she had that affect on people)! She slept at my Aunties that night and went home the next morning. She was not herself. She lay in bed with my Mam and Dad watching cartoons and enjoying her favourite cup of tea, and within minutes our beautiful baby Nelle had gone, she was with the angels. We lost her forever, ages just 2 years 7 months.