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Ken Swindles

Pendragon Communications is raising money for TAG
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Liverpool Half Marathon 2011 · 27 March 2011 ·

At The Arthrogryposis Group we are able to offer local level support to people living with Arthrogryposis Muliplex Congenita (AMC) or one of the 200 related conditions. We provide regular information and updates on care and treatment, and through our events we give excellent opportunities to meet others with arthrogryposis, their families and anyone involved in their care.

Story

<p>Thanks for taking the time to visit my JustGiving page.</p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">My 5 year old daughter was born with a rare congenital disorder &ldquo;Arthrogryposis Multiplex Congenita&rdquo; which is characterized by multiple <a title="Joint" href="http://en.wikipedia.org/wiki/Joint"><span style="color: windowtext; text-decoration: none; text-underline: none;">joint</span></a> <a title="Contracture" href="http://en.wikipedia.org/wiki/Contracture"><span style="color: windowtext; text-decoration: none; text-underline: none;">contractures</span></a> and can include <a title="Muscle weakness" href="http://en.wikipedia.org/wiki/Muscle_weakness"><span style="color: windowtext; text-decoration: none; text-underline: none;">muscle weakness</span></a> and <a title="Fibrosis" href="http://en.wikipedia.org/wiki/Fibrosis"><span style="color: windowtext; text-decoration: none; text-underline: none;">fibrosis</span></a>.</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">Her disability was diagnosed 20 weeks into our pregnancy and we went through a very traumatic time of being offered abortions and going through genetic testing ending in us having to make very tough decisions.</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">My daughter was born and other than her disability is a very bright and healthy intelligent young girl with a fantastic life ahead of her.</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">In short my wife and I would not have got through it without the support of The Arthrogryposis Group.&nbsp; There information, conferences and support were invaluable. </span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt;"></span><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt; mso-fareast-font-family: Calibri; mso-fareast-theme-font: minor-latin; mso-ansi-language: EN-GB; mso-fareast-language: EN-GB; mso-bidi-language: AR-SA;">I will be showing my support for there cause March 27<sup>th</sup> 2011 when I will be running my first ever half marathon in Liverpool, which will take a lot of hard work and discipline as I haven&rsquo;t ran properly for over 14 years since I was at school.</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt; mso-fareast-font-family: Calibri; mso-fareast-theme-font: minor-latin; mso-ansi-language: EN-GB; mso-fareast-language: EN-GB; mso-bidi-language: AR-SA;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt; mso-fareast-font-family: Calibri; mso-fareast-theme-font: minor-latin; mso-ansi-language: EN-GB; mso-fareast-language: EN-GB; mso-bidi-language: AR-SA;">I hope to raise a minimum of&nbsp;&pound;1000, with your help we can make a difference.</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt; mso-fareast-font-family: Calibri; mso-fareast-theme-font: minor-latin; mso-ansi-language: EN-GB; mso-fareast-language: EN-GB; mso-bidi-language: AR-SA;">&nbsp;</span></p> <p><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; font-size: 10pt; mso-fareast-font-family: Calibri; mso-fareast-theme-font: minor-latin; mso-ansi-language: EN-GB; mso-fareast-language: EN-GB; mso-bidi-language: AR-SA;"> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; color: navy; font-size: 10pt;"><a href="http://www.tagonline.org.uk/"><span style="color: #0000ff;">http://www.tagonline.org.uk/</span></a>&nbsp;</span></p> </span></p> <p><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; color: navy; font-size: 10pt;"> <p class="MsoNormal" style="margin: 0cm 0cm 0pt;"><span style="font-family: &quot;Arial&quot;,&quot;sans-serif&quot;; color: navy; font-size: 10pt;"><a href="http://www.runliverpool.org.uk/Half_Marathon.php"><span style="color: #0000ff;">http://www.runliverpool.org.uk/Half_Marathon.php</span></a></span></p> </span></p>

Donation summary

Total
£522.00
+ £98.72 Gift Aid
Online
£522.00
Offline
£0.00

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