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My mum was sadly taken from us by Sporodic CJD on Good Friday 2016. She only started to develope symptoms in October 2015, at which point we thought it was stress due to moving house. We noticed small changes at first such as being unable to finish a sentence or find a word she wanted to say. We insisted mum see a doctor at this point. 

Mums memory  was getting worse and by January we had the mental health team involved looking at possible dementia or stroke. By the end of February mum was unable to dress herself,  her walking had slowed down and she seemed to have declining coordination. 

By Mothers Day weekend I insisted we take her to A&E where we spent all night explaining mums symptoms to three doctors and undergoing tests. Mum could only say Yes, No and Okay but could understand questions she was asked and could still name my step father and I. It was here they first mentioned CJD. 

Mum was transferred to Southampton Neurological unit where they eventually confirmed our worst nightmare, it was Sporodic CJD and is terminal. In only three weeks my mum deteriorated quickly she no longer recognized us and could no longer speak at all. Mum sadly but peacefully died in mine and my step fathers arms at The Countess Brecknock Hospice in Andover.

My mum was a strong women not afraid of hard work she loved all things to do with animals, plants and in her words "Mother Nature". She was full of useful information about plants and their properties but her biggest passion was her love of horses. My mum would say "if the weather is nice I'll be riding the range". We always knew where to find her if we needed her. We used to joke in the 90's, when CJD was on the news, saying she had 'mad cow disease!' (Varient CJD), little did we know she did!  Although not that type and mums was not from eating beef! We are still unclear "why my mum?" and "how do you get this disease?"

This disease has shocked us as a family and we need to find a cure and answers to all our questions. Please help me raise money to fund this research. This disease is on the increase and I don't want other families to lose loved ones, like we have...

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