Erin Grace Finnie was born on 14th January 2018,  weighing 8lb 14oz & all as it should have been.
After about 4 hours she started to struggle with her breathing, she was ventilated and transferred from Burton hospital to Leicester Royal. It quickly became apparent how poorly she was & consultants thought she had a condition called PPHN. She was then transferred to Glenfield Hospital to the intensive care unit to be given a treatment called ECMO.
When Erin failed to come off this process, she had to have a CT scan & biopsy to find out why. The results showed Erin had something called Alveolar Capillary Dysplasia.
Extremely rare with only 200 reported cases worldwide & no cure. She passed away 29/01/18 peacefully in our arms.
We feel really grateful to have had 2 weeks with Erin & had the chance to make nice memories under difficult conditions. She really was beautiful & we’re very proud of her. 

So we thought if we can do something positive to help the nurses & consultants on the PICU at Glenfield then we would! 

Heart Link are the charity that supports the unit & they provide equipment and maintain the rooms that parents stay in at the hospital so that is where all the money will go to. 

We will be holding some fundraising events this summer in memory of Erin, we have also set up Erin’s Way to keep her memory very much alive. 

So far we have raised over £4,000 in kind donations & this is without trying so let’s make it £10,000 and make a huge difference to that intensive care unit that was so very nearly closed a few years ago.