Lee Yarnell

Lee's UNIQUE Running Challenge

Fundraising for UNIQUE (Rare Chromosome Disorder Support Group)
£2,066
raised of £2,018 target
Donations cannot currently be made to this page
London to Brighton Challenge, 27 May 2018
We Provide support and information to improve the care of those affected

Story

What runs/races am I planning to complete?

Hillingdon 10k - 19 Feb 17  COMPLETED in 00:57:38

SuperHero Run 10k - May 17 COMPLETED in 00:50.23

Wembley Colour Run - Jun 17 COMPLETED with the girls

BubbleRush 5k - Aug 17 COMPLETED with the girls

Great North Run (1/2 Marathon) - Sep 17 COMPLETED in 02:11:02

Folkestone Half Marathon - Sep 17 COMPLETED in 02:18:00

Great South Run (10 Miles) - Oct 17 - COMPLETED 01:27:00

Grand Union Canal Half Marathon - Nov 17 - COMPLETED 01:57:00

Ashford Half Marathon - Nov 17 - COMPLETED 01:57:21

Race at Your Pace January - complete 75 miles in total running across the whole of January - COMPLETED 96.1 Miles in total

Thorpe Park Half Marathon - Feb 18 - COMPLETED time TBC

Paris Marathon - Apr 18 - COMPLETED 04:57:28

Ultra marathon 100k London to Brighton Challenge - May 18


 I have added in virtual running events to help motivate me during my training these are:

Race to the Future - POW Virtual Running Feb 18 - COMPLETED

Time Warp 10k - Pow Virtual Running Mar 18 - COMPLETED

Golden Egg Challenge - April 18 - COMPLETED

#RejectRunner(London Marathon) - Pow Virtual Running - 22 Apr 18

Challenge the Dragon - POW Virtual Running - July 2018


"Why? Are you crazy?" I hear you ask!

"Yes, possibly, but there is also this..."

We knew that our little monkey had a Chromosome deletion. When we first found out we hit the internet to do some research. Dr Google wasn't much help and it turns out that it's so rare it doesn't actually have a name. Amongst our searches we found Unique (www.rarechromo.org).

UNIQUE helped us find out more about her 12q deletion. They had compiled a short information download that gave us more details about her chromosomes and what her deletion might mean for her in the short and long term. The future is very much unknown, there is little research and scientific knowledge on 12q deletions as it is very rare, which means that our little monkey has the ability to create her own future, just as she likes. With so little known and no real comparatives, we celebrate every milestone no matter how big or small. 

UNIQUE also put us in contact with other families in our local area who have chromosomal disorders. We have found other 12q families and been able to build a small network of allies and digital friends in countries all over the world.  UNIQUE is run by volunteers and by donations and the work they do in supporting families through what can be a very daunting, overwhelming and emotionally challenging time is exceptional. They have been tremendously supportive to us and I wanted to give back to them to show our appreciation for all the amazing work they do.

I have completed a couple of marathons before, one in Rome back in 2011 and a very hilly one in San Francisco back in 2014 (turned out after I signed up to it that it's one of the top 15 hardest in the world) but I wanted even more of a challenge and that's why I came up with my challenge list. I have just turned 40 years old and I want to have completed an ultra run before I turn 41. My ultimate goal is to raise £2018 before the end of August 2018.

Please, please, please donate any spare change to me, donate on here, donate by text. Donate to cover every race, donate because you think I'm completely bonkers or donate a little bit for each race. Whatever you choose, please donate something. Every little penny really does count!

I apologise in advance for my shameless FB posts, emails and other plugging over the next 18 months asking for your hard earned money, I know it's a lot to ask, but it really is for a great cause!

Ooh and don't forget to tick the Giftaid box!

Thanks for taking the time to visit my JustGiving page.



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About the charity

Unique provides much needed help and information to those caring for a family member with a rare chromosome or single gene disorder. These are lifelong conditions affecting at least 1 in 200 babies, causing disability and medical issues. For more information see www.rarechromo.org

Donation summary

Total raised
£2,066.00
+ £193.63 Gift Aid
Online donations
£1,171.50
Offline donations
£894.50

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