As many of you are aware, our little Lily Bea was diagnosed, aged 9 weeks, with Spinal Muscular Atrophy Type 1, and was given just 3-8 weeks to live. With her enormous strength of character, determination, and love of life, she fought on until aged 9 months and 2 days. We are immensely proud of Lily, and all that she seems to have inspired in others, but what would make us even more proud, in addition, would be to have made a significant financial contribution towards research into finding a cure for SMA. There is currently no cure for SMA, and we hope that one day there will be.

Lily has left an amazing legacy already, but please help us to make her legacy even further-reaching.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.