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For 34 years the Sturge Weber Foundation has strived to find answers, improve medical treatments and forge opportunities in research to combat this rare disease that affects only 2% of the population. In honor of our precious baby boy Lincoln, help us to spread the word and raise money for this cause - it could make all the difference in his future!
Lincoln was diagnosed with Sturge Weber Syndrome just a few days after being born and while this diagnosis was terrifying at first, we have been super encouraged and thankful for the SW community and the Doctors we have been referred to and we are excited to give back to them and their mission to make a meaningful impact to those affected by this condition.
Matthew and I have joined the Cook Children's Hospital team (this is where Lincoln's Neurologist is) and here is how you can get involved... This is Lincoln's sub-page for the Cooks team- you can either donate money to the Sturge Weber Foundation directly on this page, and/or you can log your miles and share with your social media, friends and family. If you're already working out, going for walks, cycling, etc. make it count even more by logging them here then spreading the word that your miles are going towards the Millions Miles for Sturge Weber!
*If you would rather mail a check to the Sturge Weber Foundation let me know and I will get you their mailing address!