This is a page dedicated to our son Ethan Otis Thornton who passed away on December 24th 2012 at age 2 1/2. He was a special boy diagnosed early on with a rare genetic condition known as Ponto Cerebellar Hypoplasia- PCH. While there are 6 types of PCH there is very little known about the condition and has affected many children wordwide. Our goal is to raise money for the Joshua Deeth Foundation which supports research and aid to families coping with the lack information about this condition. 

Please note that this is a UK based foundation, but the support is worldwide. Please use the currency changer at top of page to select your donation currency of choice.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. 

Please make a donation on Ethan's behalf to support their continued efforts. Thank you for your support and love for Ethan.

The Thornton Family.

Updates 0

Raising money for

The Joshua Deeth Foundation

The Joshua Deeth Foundation

Charity Registration No. SC041777

The Joshua Deeth Foundation is a Charity set up in memory of Joshua O'Donnell Deeth who passed away in November 2009 from the rare neurological disorder Pontocerebellar Hypoplasia Type 1. The Charity raises funds for research and supports families affected by Pontocerebellar Hypoplasia.

Raising money for

Run by The Joshua Deeth Foundation

Charity Registration No. SC041777

Donations 47

Hi Lisa and Patrick, I was thinking of your beautiful Ethan and wanted to do something tangible instead of just THINKING. We love you, Jen & Joe Mrozienski and Family

Donation by Jennifer and Joe Mrozienski on 14/05/15

Just want you to know we think of your Angel Ethan often! Much love from an old friend!

Donation by Jennifer (Dillingham) Mrozienski &Family on 12/03/14


I am so sorry Lisa and Patrick, I did not know. Hope this can help a little for the researches! Hugs Gina

Donation by Gina Solano on 03/06/13


Thinking of you all!

Donation by Kristine and Dan Escalante on 17/01/13

Donation by John Mastrony and Allison Lesko on 15/01/13

Donation by Jenifer Flynn on 15/01/13


Love and prayers from your cousin, Vicki

Donation by Vicki Umans on 12/01/13

I will always remember sweet Ethan. And he will forever live on in the two of you. Sending my prayers.

Donation by Heather Burns on 05/01/13


Donation by Alice and Donald Mastrony on 02/01/13

Donation by Patty Fenton on 01/01/13


For our little nephew, and his amazing parents Pat and Lisa.

Donation by Aunt Mary and Aunt Monica on 31/12/12


In loving memory of Ethan

Donation by The Bondy-Leeders on 31/12/12


Lisa & Patrick: May you find peace of mind knowing that you did everything you could for Ethan. My thoughts and prayers are with you.

Donation by Barbara & Gerry McDermott on 31/12/12


We are so sorry for the loss of your beautiful angel, Ethan. I would imagine he had the most magnificent laugh. Please know we are praying for you.

Donation by Jennifer & Joe Mrozienski on 30/12/12


In memory of Ethan and the endless love he basked in and inspired.

Donation by Tricia Tierney on 30/12/12


Ethan you will be so missed by so many but we know you are with the angels. God bless you sweet boy.

Donation by BOB & DIANE GERBER on 30/12/12


In memory of Ethan. We're so sorry for your loss.

Donation by Jamie Jennings & Drew Butler on 30/12/12

In memory of sweet Ethan.

Donation by Shirley Weiss on 30/12/12


In loving memory of Ethan. Our thoughts are with you all.

Donation by Deanna Raider on 29/12/12


A donation for Ethan to help the future of others. Sincerely,

Donation by linda soter on 29/12/12


I love you guys take care

Donation by James Riley on 29/12/12


In loving memory of precious Ethan.

Donation by Denise Williams on 29/12/12


In loving memory of Ethan.

Donation by Monique Duci on 29/12/12

Donation by cynthia gabriel on 29/12/12


The memories of our precious grandson will forever be etched in our hearts. We love and miss him dearly. Sleep in heavenly peace, sweet Ethan.

Donation by Maureen and John Thornton on 29/12/12


Donation summary

  • * Online donations$3,472.89
  • Offline donations$0.00
  • Text donations$0.00
  • Total raised$3,472.89
  • Gift Aid$4.04

* Charities pay a small fee for our service. Find out how much it is and what we do for it.