Story

New fundraising target for 2013 = £12,000

Total raised in 2012 = £12,619.76 - THANK YOU EVERYONE!

Total raised in 2011 = £5,309.18

Welcome to Morven's Just Giving page. This page has been set up to raise funds for Cystinosis Foundation UK.

Morven was diagnosed with cystinosis at 8 1/2 months old and has been subject to the gruelling medicine regime ever since. Cystinosis is an extremely rare inherited metabolic condition which prevents Morven from processing an amino acid called cystine. The build up of cystine forms crystals which initially impact her kidneys and eyes, and will go on to impact every other organ in her body. The drugs that Morven takes every six hours take steps to reduce her cystine levels and therefore slow her decline but a kidney transplant is inevitable.

By supporting Cystinosis Foundation UK we are looking to assist the charity in meeting its aims which include; supporting cystinotics and their families, raising awareness and promoting research into the treatment of cystinosis.

This is a small charity and as such every penny really does count and will make a real and tangible difference to Morven and other cystinosis sufferers. Medical advances can make massive strides in relatively few years, so we hope that the research into treatments and cures of cystinosis will be able to change the quality of Morven's life sooner rather than later.

We plan to raise money through various avenues on this page but feel free to donate at any time! And don't forget to Gift Aid your donation where possible.

Raising money for

Cystinosis Foundation UK

Cystinosis Foundation UK

Charity Registration No. 1074885

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Donations 540

More winnings from Cousin Bully

Donation by Auntie Laura on 24/03/15

$30.00

I sang with Rock Choir last night at The Glitter Ball and was very moved by Morven's story.

Donation by Cathy Bell on 08/03/15

£10.00

+ £2.50 Gift Aid

Grandad's Birthday money x

Donation by Anonymous on 04/03/15

£50.00

+ £12.50 Gift Aid

Well done Fi!

Donation by Bec and Col Lancaster on 02/02/15

£10.00

+ £2.50 Gift Aid

In recognition of Fi's dry January ;-)

Donation by Rachel on 02/02/15

£10.00

+ £2.50 Gift Aid

Well done cousin Fi. Piety of epic proportions.

Donation by Alex Hutchison on 01/02/15

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 02/01/15

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 02/01/15

£11.00

+ £2.75 Gift Aid

Best wishes to you all. x

Donation by Al Thomson on 02/01/15

£20.00

+ £5.00 Gift Aid

I hope they continue to make progress and beat this disease for your beautiful girl!

Donation by Emma Dunsdon on 02/01/15

£10.00

+ £2.50 Gift Aid

Xxx

Donation by Colin Y . on 02/01/15

£20.00

+ £5.00 Gift Aid

From your friend at Knitting for Cancer. Happy Holidays Hutchisons!

Donation by Fran on 25/12/14

$60.00

Donation by Anonymous on 21/12/14

Donation by Sheila Weatherhead on 20/12/14

£50.00

+ £12.50 Gift Aid

Donation by Alan Weatherhead on 17/12/14

£50.00

+ £12.50 Gift Aid

Donation by Amy on 14/12/14

£10.00

+ £2.50 Gift Aid

West Linton Running Club Subs for second half of 2014 & Running Festival donation

Donation by Morag Everest on 02/12/14

running club subs- 6 weeks

Donation by Kirsty on 02/12/14

£12.00

+ £3.00 Gift Aid

Runnering club

Donation by Gavin on 02/12/14

lovely Christmas cards.

Donation by Aimi on 26/11/14

£10.00

+ £2.50 Gift Aid

A belated donation for the running fest. Thanks all - great day

Donation by Si & Claire on 24/10/14

£20.00

+ £5.00 Gift Aid

Cash collected at West Linton Running Festival Oct 2014 - thank you to Sheena!

Donation by Anonymous on 19/10/14

£266.00

+ £66.50 Gift Aid

Thanks for all those that made cakes for sat they were appreciated and needed!

Donation by Anonymous on 08/10/14

£25.00

+ £6.25 Gift Aid

I'll restrict next year's run to advertised distance.

Donation by Anonymous on 07/10/14

£10.00

+ £2.50 Gift Aid

Cousin Bully's winnings

Donation by Auntie Laura on 06/10/14

£50.00

Donation summary

  • * Online donations£32,507.09
  • Offline donations£3,135.89
  • Text donations£0.00
  • Total raised£35,642.98
  • Gift Aid£4,135.77

* Charities pay a small fee for our service. Find out how much it is and what we do for it.