Story

New fundraising target for 2013 = £12,000

Total raised in 2012 = £12,619.76 - THANK YOU EVERYONE!

Total raised in 2011 = £5,309.18

Welcome to Morven's Just Giving page. This page has been set up to raise funds for Cystinosis Foundation UK.

Morven was diagnosed with cystinosis at 8 1/2 months old and has been subject to the gruelling medicine regime ever since. Cystinosis is an extremely rare inherited metabolic condition which prevents Morven from processing an amino acid called cystine. The build up of cystine forms crystals which initially impact her kidneys and eyes, and will go on to impact every other organ in her body. The drugs that Morven takes every six hours take steps to reduce her cystine levels and therefore slow her decline but a kidney transplant is inevitable.

By supporting Cystinosis Foundation UK we are looking to assist the charity in meeting its aims which include; supporting cystinotics and their families, raising awareness and promoting research into the treatment of cystinosis.

This is a small charity and as such every penny really does count and will make a real and tangible difference to Morven and other cystinosis sufferers. Medical advances can make massive strides in relatively few years, so we hope that the research into treatments and cures of cystinosis will be able to change the quality of Morven's life sooner rather than later.

We plan to raise money through various avenues on this page but feel free to donate at any time! And don't forget to Gift Aid your donation where possible.

Updates 0

Raising money for

Cystinosis Foundation UK

Cystinosis Foundation UK

Charity Registration No. 1074885

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Raising money for

Run by Cystinosis Foundation UK

Charity Registration No. 1074885

Donations 561

Another fab running festival! Thanks

Donation by Anonymous on 04/08/15

£20.00

+ £5.00 Gift Aid

A brilliant Running Festival, thank you.

Donation by The McHaffs x on 03/08/15

£40.00

+ £10.00 Gift Aid

Running Festival Entry for me and Lucy - we had a great time!

Donation by John on 02/08/15

£30.00

+ £7.50 Gift Aid

Running festival entry. Thanks for delish cherry pie and strawbs!

Donation by Anonymous on 02/08/15

£20.00

+ £5.00 Gift Aid

Running Festival

Donation by Paul on 02/08/15

£30.00

+ £7.50 Gift Aid

Entry for the running festival

Donation by Paul Nichol on 02/08/15

£20.00

+ £5.00 Gift Aid

Running Festival

Donation by Will on 02/08/15

£30.00

+ £7.50 Gift Aid

Entry donation for the 10k

Donation by Kirsten on 01/08/15

£20.00

+ £5.00 Gift Aid

West Linton Running Festival 2015

Donation by Anonymous on 02/08/15

£10.00

+ £2.50 Gift Aid

Very happy to help in a small way. Hope to come every year as long as my knees last.

Donation by Caroline W on 31/07/15

£20.00

+ £5.00 Gift Aid

Thanks for da box.

Donation by Anonymous on 31/07/15

Gran & Grandad's bits & pieces

Donation by Anonymous on 28/07/15

£49.00

+ £12.25 Gift Aid

A band said to give some leftover ticket money from a show at King Tuts to a cause I felt was worthwhile et voila!

Donation by John-Paul Mason on 27/07/15

£10.00

"Entry" into the West Linton Running Festival. If I PR in the 5K I'll match this donation.

Donation by Auntie Laura on 21/07/15

$50.00

Looking forward to the running festival in August!

Donation by Mick on 03/07/15

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 09/06/15

£150.00

Donation by Anonymous on 15/05/15

£50.00

+ £12.50 Gift Aid

Just watched Morven's video that Laura posted x

Donation by Anonymous on 14/05/15

£20.00

+ £5.00 Gift Aid

Donation from Selkirk High School Adult Continuing Education - thanks Ann and the ladies.

Donation by Neil Hutchison on 23/04/15

£50.00

Gran's sewing for Barbara.

Donation by Marion Hutchison on 15/04/15

£20.00

+ £5.00 Gift Aid

Donation from ACE Selkirk

Donation by Anonymous on 06/04/15

More winnings from Cousin Bully

Donation by Auntie Laura on 24/03/15

$30.00

I sang with Rock Choir last night at The Glitter Ball and was very moved by Morven's story.

Donation by Cathy Bell on 08/03/15

£10.00

+ £2.50 Gift Aid

Grandad's Birthday money x

Donation by Anonymous on 04/03/15

£50.00

+ £12.50 Gift Aid

Well done Fi!

Donation by Bec and Col Lancaster on 02/02/15

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£33,179.03
  • Offline donations£3,135.89
  • Text donations£0.00
  • Total raised£36,314.92
  • Gift Aid£4,238.02

* Charities pay a small fee for our service. Find out how much it is and what we do for it.