sarah clark

Oscar's Quendon & Rickling Run Fest page

Fundraising for The Maddi Foundation
£886
raised of £1,000 target
by 49 supporters
Donations cannot currently be made to this page
The Maddi Foundation

Verified by JustGiving

RCN 1174374
We raise funds for SPG15 medical research to find a cure for this rare disease

Story

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The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling SPG15, a degenerative neuro disease, for which to date there is no cure or treatment! The Charity aims to continue to support medical research to help cure this disease and other similar rare diseases. Conditions this rare receive very little attention and funding.

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About the charity

The Maddi Foundation

Verified by JustGiving

RCN 1174374
The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.

Donation summary

Total raised
£886.00
+ £156.25 Gift Aid
Online donations
£886.00
Offline donations
£0.00

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