We empower & support people with Poland Syndrome to live well providing 121 support, advocacy, wellbeing programmes, early diagnosis help, peer support, ways to connect. We need your help to continue this work and continue to change lives.
Story
Fundraising for PIP-UK is the least I can do considering how much Sam and the other volunteers at PIP-UK helped me during my experience with Poland Syndrome. When my son Reo was born and we noticed his body was different, we reached out online for an answer and found PIP-UK. Their guidance and support was hugely appreciated and still is. Now I can proudly call myself a Trustee with the charity and always want to do my bit to help the cause.
Hopefully now, my Tough Mudder pain helps spread the word and hopefully raise some funds to keep the charity’s good work going. I have even roped in my sisters other half, Joe Goffin to share my pain, all donations truly appreciated for this cause close to all our hearts.
We empower & support people with Poland Syndrome to live well providing 121 support, advocacy, wellbeing programmes, early diagnosis help, peer support, ways to connect. We need your help to continue this work and continue to change lives.
We are the only charity in the UK that provides invaluable support to anyone affected by Poland Syndrome, a rare limb difference.
Poland syndrome is a condition where a child is born with missing or underdeveloped chest muscles, and can affect the ribs, shoulder, arm, internal organs & hand.