Story

Hi all and thank you for taking the time to look on Alice's page.

Alice was born with the rare chromosome disorder - 1q21.1 duplication and agenesis of the corpus callosum. I didn't know this when she was born.

After a rough couple of months of her not sleeping I thought she just didn't like me as she didn't like me holding or cuddling her. It was heart-breaking. My doctor became concerned as she was...n't smiling or moving much so he sent us to a paediatrician. She took some chromosome tests which would come back in three months. In that time Alice became happier. She started on solid food and sleeping better. She still wasn't rolling, trying to pull herself up or lifting her arms.

Alice was nine months old when the tests came back clear. So she got to see a physiotherapist while waiting for a C.T. scan which came back clear so they did a MRI. She was seventeen months when she had the MRI. She still wasn't sitting up or moving her hands much. We went for the results and found out she had agenesis of the corpus callosum (no bridge in her brain). They told me that  she may not sit, talk or walk. A month later she started sitting!

At five she started saying odd words and six months later she started walking!!! She finally got diagnosed in 2011 with 1q21,1 duplication.

Alice also has epilepsy ,global development delay, problems swallowing, sensory difficulties, eczema, low muscle tone and poor immune system, which causes Alice to be ill very often.  
It has been a hard eight years, she has gone through so much but she still manages to smile lots. She is an Amazing, Loving, Inspirational, Courageous and Encouraging little girl. She never ever gives in and reaches for the sky. She can put a smile on the most miserable persons face. She is my sunshine and little star.

Alice needs a new special needs bed and unfortunately this cannot be funded by Social Services as it costs £7276, therefore we are trying to raise the money to buy this. 

Updates 3

Thank you so much to everyone who came along to Alice's Autumn Fair, Saturday 11th October at Preston Flag Market. What a stunning day, with some amazing stalls and an incredible £730.57 was raised for Alice's appeal. You are all incredible and Alice had the biggest smile ever!

21/10/14 03:58

Don't forget you can keep up to date with what we're doing in aid of Alice's Appeal on her Facebook page - https://www.facebook.com/Alicesfund?fref=ts x

29/07/14 10:48

Thank you everyone for all your help with fundraising for Alice's bed, your support is hugely appreciated! Alice sends you all a big high five :0) x

29/07/14 10:47

Raising money for

Rock FM and Magic 999's Cash for Kids

Rock FM and Magic 999's Cash for Kids

Charity Registration No. 1122062

Rock FM and Magic 999's Cash for Kids aims to improve the quality of life for children living in the Lancashire area. It makes grants to support local kids who are suffering from abuse or neglect, who are disabled and have special needs and children and young people that need extra help and care.

Donations 39

Donation by Anonymous on 05/11/14

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 05/11/14

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 07/10/14

Donation by Anonymous on 07/10/14

Donation by Anonymous on 07/10/14

Donation by Anonymous on 07/10/14

Donation by Anonymous on 07/10/14

Sorry its only £5, but everyone adds up! Good luck! We'll all pull together and get you that bed you so much deserve.

Donation by Dave, Charlotte and boys x on 14/09/14

£5.00

+ £1.25 Gift Aid

Amazing and brave little Alice. Keep smiling :D

Donation by Anonymous on 11/09/14

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 01/09/14

£10.00

+ £2.50 Gift Aid

Go on Pauline Bayliss, you run girl....

Donation by Anonymous on 31/08/14

£10.00

+ £2.50 Gift Aid

Amazing little girl! Good luck with your fundraising! X

Donation by Annette on 31/07/14

£5.00

+ £1.25 Gift Aid

Read your story tonight and thought my fiver would do you more good than whatever I might have bought for myself on a day out with my Sis. I hope you get your bed soon. Lots of love

Donation by Sonia on 29/07/14

£5.00

I'm finally able to help a little! We just love Alice, she's an amazing girl ❤

Donation by Melanie on 15/07/14

$25.00

Donation by Anonymous on 14/07/14

£5.00

+ £1.25 Gift Aid

Donation by JOHN/JANET WILKINSON on 14/07/14

£20.00

+ £5.00 Gift Aid

All the best to yourselves and Alice. Hope your fundraising campaign goes well.

Donation by Anonymous on 22/06/14

£10.00

+ £2.50 Gift Aid

Best of luck in raising the money for the bed and a BIG well done to you for walking the guild wheel....keep up the good work :-) xx

Donation by Pauline on 09/06/14

£10.00

+ £2.50 Gift Aid

well done Michael and Michelle x

Donation by Gramps and Nana on 09/06/14

£12.00

+ £3.00 Gift Aid

well do on completing the guild wheel walk yesterday,claire and jeannie

Donation by claire on 08/06/14

£10.00

+ £2.50 Gift Aid

Well done to you all for doing guild shell

Donation by Jane English on 08/06/14

£5.00

+ £1.25 Gift Aid

:)

Donation by Lou Taylor on 08/06/14

£4.00

+ £1.00 Gift Aid

Donation by Debra Ainsworth on 28/05/14

£21.00

+ £5.25 Gift Aid

Hope You Raise The Money Needed, Alice Is A Lovely Little Girl With A Beautiful Smile & An Amazing Mummy! Good Luck x

Donation by Angela on 12/05/14

£20.00

+ £5.00 Gift Aid

Donation by Brian Chidley on 02/04/14

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£1,136.98
  • Offline donations£1,500.00
  • Text donations£0.00
  • Total raised£2,636.98
  • Gift Aid£250.50

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