Corpal - Supporting those affected by ACC or Aicardi Syndrome
Participants: International Day of Persons with Disabilities
on 3 December 2019
Participants: International Day of Persons with Disabilities
on 3 December 2019
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Corpal is a not-for-profit support group and charity run by parents, families, and carers of children and adults who have ACC or Aicardi Syndrome.
It is not a very popular / much-heard-of charity, but the disorders of Corpus Callosum in children can be very life altering.
I myself have a partial dysgenesis of the Corpus Callosum, and I have not known until I was in my late 20ies. If I had help when I was little it would have been easier for me at school.
Now that I know what I've got to deal with for the rest of my life, I feel like I would like to do my little bit to help the children and their parents who are faced with life-long challenges.
It is devastating to discover that your child has a rare medical condition and Corpal recognise the need for emotional support.
Corpal supports those affected by Agenesis of the Corpus Callosum which means that the major pathway across the two hemispheres has failed to form correctly.
Their website:
https://www.corpal.org.uk/
has been set up to provide support and information for parents and those affected by these conditions. Over the past few years they have tried to raise awareness of these conditions around the UK.
Corpal can supply information on the condition and give parents the chance to contact other families and organisations.
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