My 16 year old son developed chronic migraines aged 11 which was finally diagnosed as PoTS (Postural Tachycardia Syndrome). Family life changed and our role as parents changed.

For the first 3 years no health professional told us we were carers and no one pointed us in the direction of Carers in Beds.

Over the last 2 years we have been supported by their cafes, monthly meetings, treatments, training such as managing stress, Emotional 1st Aid. 

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