Anna Taylor

Yorkshire Three Peaks

Fundraising for APS Support UK
£1,011
raised of £750 target
by 52 supporters
Donations cannot currently be made to this page
APS Support UK

Verified by JustGiving

RCN 1138116
We raise awareness and help fund research to improve the lives of people with APS

Story

Thanks for taking the time to visit my JustGiving page.

As many of you know, I have a chronic condition calls Hughes Syndrome, AKA APS (anitphospholipid syndrome) which is a blood clotting disorder, essentially making the blood "sticky" and more likely to clot. It can potentially cause strokes, DVTs, heart attacks and pulmonary embolisms, and is a leading cause of miscarriage and pre-eclampsia.

I was diagnosed with APS in 2009 when I was 15. I had a pain in my right calf which the doctors were convinced was a pulled muscle and told me it was all fine. 3 months, 2 A&E trips and a private ultrasound later (since no doctors would listen to me), they finally realised I had a clot in my leg and I was subsequently diagnosed with APS, which the doctor wrote on a post-it and told me to google because she didn't know much about it but basically told me I wouldn't be able to do anything with my life and should essentially live in a bubble. Actually, it is a manageable syndrome that just needs more medical professionals understanding what it is and how to treat it, but at the time I was absolutely terrified and completely lost. The delay, while luckily not fatal as it easily could have been, did damage a valve in my calf, meaning I have to wear a compression stocking to keep the blood travelling back up my leg. This is a constant reminder that, due to a lack of information on the disease, I could have been another statistic that slipped through doctors' fingers. It is also a reminder of how lucky I am to be able to do something like the three peaks to help spread awareness and help diagnose and treat APS much more efficiently!

If you feel that this is something worth supporting then please donate something - anything that you think is suitable.

Thank you so much for your support!

If you want to know more this is the Hughes syndrome foundation website: http://www.hughes-syndrome.org/index.php.

If you want to ask me anything then feel free, I'm happy to answer questions :)


About the charity

APS Support UK

Verified by JustGiving

RCN 1138116
Antiphospholipid syndrome (APS) is an autoimmune condition in which there is an increased tendency for the blood to clot. The condition can cause strokes, heart attacks, pulmonary emboli and DVTs. In pregnancy, APS is a leading cause of recurrent miscarriage and stillbirth.

Donation summary

Total raised
£1,011.00
+ £194.00 Gift Aid
Online donations
£1,011.00
Offline donations
£0.00

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