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ALD Life is a patient support group for patients and families affected by Adrenoleukodystrophy (ALD) - a rare genetic disorder that affects mainly young boys aged 4 to 10. At present, there isn't cure for ALD and death usually occurs within a few years. Help us today to give hope for tomorrow.
ALD Life Registered charity number 1106008
For Rare Disease Day 2018, on the 28th February, ALD Life is hoping to raise money using the face paint social media challenge
"From Joy and Vaughan Oriel in memory of our son Richard"
Vaughan Oriel donated
£50.00 + £12.50 Gift Aid
"Donation instead of sending Christmas cards this year"
Wendy & Olivia Bostock donated
"Donating instead of buying Xmas cards this year"
tara webb donated
£20.00 + £5.00 Gift Aid
"Thank you to Clinical Scientist Leila Cornes for continuing the fight for ALD Life, even when on maternity leave. Thank you for the Lego cards!"
Heather Brown donated
£10.00 + £2.50 Gift Aid
"Great group of friends who work hard for charities."
PAULINE KERSHAW donated
"Such a worthwhile cause doing so much research into this horrible disease"
Pauline Williams donated
£10.00 + £0.00 Gift Aid
Tony & Julie Annand has raised $28,246.96 so far
I'm Raising funds to help with research for Tony & Julie Annand because My 3 wonderful son's have this disease.
Wendy Bostock has raised $3,362.64 so far
In memory of Mark Bostock
Jon Milne has raised $1,842.27 so far
Jon's Clipper Round the World Race
Melanie Stand has raised $1,592.36 so far
I'm We are doing a skydive!!!!!! eek!!!! #nervousmuch for Melanie Stand because Katies Dad, Mark, passed away from ALD.
Isabelle Nicol has raised $1,234.30 so far
I'm We're shaving our heads for Isabelle Nicol because it's in memory of Phil and for ALD Life.
Katie Thomas has raised $1,051.64 so far
I'm We're running the most ridiculous half marathon for Katie Thomas because in memory of our uncle.