Barney Taylor

Barney's Coast to Coast Scotland page

Fundraising for UNIQUE (Rare Chromosome Disorder Support Group)
£2,362
raised of £1,000 target
by 61 supporters
Donations cannot currently be made to this page
Participants: Rob Reynolds
We Provide support and information to improve the care of those affected

Story

Ladies and Gentlemen - thank you for visiting this page.  This is a 105 mile, off-road race across Scotland over two days.  It is going to be difficult and hurt quite a lot.  Not much more to add to that.  I will be accompanied by my good friend and experienced triathlete Rob Reynolds.


I am competing for a cause now close to me.  Unique is the UK’s only registered charity for families affected by rare chromosome disorders.  www.rarechromo.co.uk


Rare chromosome disorders involve missing, extra or rearranged genetic material on one or more of a person’s chromosomes. Many of those affected are born sick and disabled, unable to walk or talk.  Some only find out they are affected when they come to have children of their own. Their rarity means that information about the disorders is scarce.


When my close friend Louise Succar's daughter Poppy was diagnosed in March 2015 at just over a year old, it became clear how little funding and publicity such rare conditions receive.  Poppy has Idic chromosome 15 syndrome, which occurs in just 1 in 30,000 newborns and has a wide range of symptoms that will affect her for the rest of her life.


I originally decided to test myself with this endurance challenge to prove that i could.  But I am now absolutely running for Poppy and others like her, in the hope that they may in some small way benefit.

About the charity

Unique provides much needed help and information to those caring for a family member with a rare chromosome or single gene disorder. These are lifelong conditions affecting at least 1 in 200 babies, causing disability and medical issues. For more information see www.rarechromo.org

Donation summary

Total raised
£2,361.29
+ £483.00 Gift Aid
Online donations
£2,361.29
Offline donations
£0.00

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