Our son George was diagnosed with a rare form of epilepsy aged 1 . Over the past 10 years he has been on a roller coaster ride of treatment, surgery and support.  At worst he was having more than 40 seizures a day and sleeping for 20 of the 24 hours! Thankfully due to the great work of physicians, surgeons and ongoing medication, George is now seizure free.  As a result his development and understanding  is starting to come on and 2017 has seen George start to say his first few words.  A milestone you’d normally celebrate of a two year old, but due to George’s epilepsy this is many years later.  He continues to need significant support both medically and socially and for that we are very grateful for the many organisations he benefits from.

So why am I sharing this with you? Well, I want to raise £5000 (or more!) for Young Epilepsy, who are a National charity supporting children and young people to have a better future with epilepsy.  Their research programme is Internationally renowned and has led to a significant improvement in the understanding and treatment of epilepsy and its impact on children and their families.

Check out their life changing work here: