Your friends are fundraising. Don't miss out, opt in.

We did it!

Our campaign is now complete. 71 supporters helped us raise US$6,940.00

Visit the charity's profile
Closed 30/06/2021
Sturge-Weber Foundation

SWF Million Miles for Sturge-Weber Syndrome

The SWF Million Miles Fundraising Campaign is a national event the coincides with SWF's Month of Awareness. It is an opportunity to bring families, professionals and the general public together for a great cause and impact.
US$6,940
raised
by 142 supporters
Donations cannot currently be made to this page
Event: SWF Million Miles for Sturge-Weber Syndrome, from 1 April 2021 to 30 June 2021
Closed on 30/06/2021
RCN 742485813

Be a fundraiser

The campaign has now expired but it's not too late to support this charity.

Visit the charity's profile

Story

The Million Miles Campaign is a fundraiser benefitting the Sturge-Weber Foundation and research initiatives. The duration of the fundraiser is 3 months (April 1 June 30, 2021). It is an opportunity for EVERYONE to participate in something bigger than themselves that will ultimately lead to the improvement of life for SWS patients and families.

SWF team captains will build teams across the United States. These teams will consist of patients, family, friends and interested donors. Each participant is requested to achieve one million steps and minimum of $1000 in donations (1 cent per step). Our hope is to cover one million miles collectively and raise $300,000. As each person takes on their role as a walker, a runner, or cyclist, they are going the distance for SWS.

With the funding raised through the Million Miles Campaign, the Foundation will be able to:

1. Provide funding to researchers specifically leading investigations in SWS

2. Provide opportunities for professional collaboration to obtain a better understanding of SWS, best treatment practices, protocols and pharmaceutical therapies

3. Deliver educational information to patients and families on the most up to date medical information regarding treatments, pharmaceuticals, and physicians/ institutions that specialize in SWS treatment

4. Provide a community for SWS patients and families to navigate their individual journey with SWS together.

About the charity

We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.

Donation summary

Total raised
US$6,940.00
Online donations
US$6,940.00
Offline donations
US$0.00
Direct donations
US$0.00
Donations via fundraisers
US$6,940.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.