0

%

£4,457.06

raised of
£20,000
target by 18 supporters
Just4Children

Carmela's Fight to Stay Mobile

Carmela has a rare progressive muscle wasting disease, shortening her life to around 16 or less. Carmela is a fighter and is determined to stay mobile and enjoy her short life - but it costs!
Closes on 01/01/2022
Charity Registration No: 1164473

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Story

Carmela is a very happy, bright and funny little 5 year old girl from Wiltshire with a zest for life but she struggles with daily obstacles.

Carmela's condition is called LMNA Congenital Muscular Dystrophy which is a very rare type of progressive muscle wasting disease with only around 50 known cases in the UK. It weakens every muscle in the body including the heart and lungs. Consequently, children with the condition can be lost suddenly due to heart related problems or are fortunate to make it to 16 years.

We are needing help for Just4Children to fund ongoing specialised equipment and physical therapy as she grows and, as the disease progresses.

Carmela currently has no regular physio due to lack of government resources! So, we are having to make sure we do daily regular stretching and mobility exercises but not being paediatrically trained we worry we are doing more harm than good. Therefore, we would like to pay for private physio.

Carmela requires regular therapy to help keep her muscles relaxed, joints loosened to reduce joint contractures and spine deformities that come with this progressive disease but to help keep her mobile for as long as possible.

In addition, we want to create an accessible garden all year round for her wheelchair and days when she has energy to walk about, which involves the garden being levelled out and astro turfed.

Carmela has weak neck muscles causing her to have a floppy head so she wears a safety helmet as her head hits the floor like a brick when she falls and a neck brace most of the time to support her head but, to help reduce kyphosis in the cervical area as she grows. Carmela also wears a lycra suit under her clothes to support her spine as she grows and for more stability to walk.

Carmela uses a power wheelchair for long walks and a walker to get about.

Carmela needs your support!

Info for donors

Photos

11

Fundraisers

6

user

Carmela Chillery-Watson

£960.00

raised by 27 supporters

0%
user

Danielle Tudor

£572.00

raised by 41 supporters

0%
user

Neil Foord

£165.00

raised by 7 supporters

0%
user

Elaine Barrow

£45.00

raised by 4 supporters

0%
user

justin olejnik

£20.36

raised by 1 supporter

0%
Supporters

12

Medequip

19 days ago

For Carmela

£100.00

Anonymous

21 days ago

Thank you Michelle Turner for raising this amount at a carbooty. Xx

£62.16

user

Carmela Chillery-Watson

2 months ago

Vintage Meet Fair fundraising Stall. Thank you everyone.

£38.00

user

Carmela Chillery-Watson

2 months ago

Thank you to the Devizes Fire Station raising this amount for my therapy fund at a car wash event.

£372.50

user

Carmela Chillery-Watson

2 months ago

Thank you Jean for sponsorship for Hollie

£20.00

About the charity

Just4Children
Just4Children

Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Charity Registration No: 1164473

http://www.just4children.org

Donation summary

Total raised

£4,457.06

+ £259.75 Gift Aid

Direct Donations

£1,759.70

Donations via Fundraisers

£1,777.36

Offline donations

£920.00
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Carmela's Fight to Stay Mobile

Just4Children