We did it!

Our campaign is now complete. 40 supporters helped us raise £2,246.00

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Closed 28/11/2017
Alex, The Leukodystrophy Charity

ALD Life Hope Appeal for families and patients affected by ALD & AMN

Give a gift of hope to those devastated by adrenoleukodystrophy (ALD) & adrenomyeloneuropathy (AMN) diagnoses so they can access the support they need from ALD Life.
£2,246
raised of £5,000 target
by 40 supporters
Donations cannot currently be made to this page
Closed on 28/11/2017
RCN 1106008

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Story

ALD Life is the only support organisation in the UK that helps patients and families cope with a devastating diagnosis of ALD or AMN . There are many who are currently unaware of this genetic condition in their families. With your help, we can:

Give tailored advice & practical support for the whole family; provide access to high quality info about ALD/AMN to families, patients and medical professionals; increase awareness of ALD/AMN and the link between ALD and idiopathic Addison’s disease; plus create opportunities for families to meet their peers and have respite from living with ALD/AMN. Find out more about our beneficiary services on the ALD Life website.

- £5 could pay for a phone call to someone who needs help

- £10 could provide information leaflets for newly diagnosed patients

- £25 could fund a 1 hour support session for families in need 

Donate online via this page, or using your mobile, text ALDL16 £5 to 70070 to donate £5 or text ALDL16 £10 to 70070 to donate £10.

About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
£2,245.27
+ £232.50 Gift Aid
Online donations
£2,245.27
Offline donations
£0.00
Direct donations
£2,215.27
Donations via fundraisers
£30.00

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