Craig Stephens

Craig's page

Fundraising for Nystagmus Network
£2,526
raised of £2,500 target
by 65 supporters
Donations cannot currently be made to this page
Nystagmus Network

Verified by JustGiving

RCN 1180450
We foster and fund research to improve lives for people with nystagmus.

Story

Thanks for taking the time to visit my JustGiving page.

After nearly 20 years since I last rode a bicycle, well further than the shop and back, I have signed up for the Coast to Coast charity bike ride. It's a 3 day 140 mile journey from Whitehaven to Tynemouth.  The route will cross the Lake District and Nothern Pennines and then on to the North Sea coast line.

Being the sort of chap that often acts first and thinks later, I was a little concerned when I read things like "gruelling hill climbs".  But you have to finish what you start!

For more information about the bike ride visit http://www.c2c-guide.co.uk/

In February last year our gorgeous daughter Chloe was diagnosed with a condition called Nystagmus.  Nystagmus is an incurable eye condition characterised by an involuntary movement of the eyes which often seriously reduces vision.

Following the initial shock and panic, we did as most parents would do in this situation, and went against medical advice and consulted the internet for information. After scaring ourselves silly, we eventually came across the Nystagmus Network.  The Nystagmus Network (NN) is a UK charity run by individuals and families affected by Nystagmus.  We have found their support and advice invaluable in helping us to accept and understand the diagnosis better.

Chloe is now a typical mischievous toddler who is into everything and loves going to nursery.  Until Chloe can talk and tell us what she can see we will not know the extent of her vision, but are keeping our fingers crossed.

I have set myself a personal challenge of raising £1000 for the charity over the next year.  Please help in supporting this fantastic cause, which has helped us so much, and help finance essential research which may one day find a cure.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

About the charity

Nystagmus Network

Verified by JustGiving

RCN 1180450
Nystagmus means involuntary movements of the eye. It impairs vision, affecting focus and depth perception. At least 1 in 1,000 babies are born with nystagmus. There is currently no cure. The Nystagmus Network is a UK registered charity which provides support, raises awareness and funds research.

Donation summary

Total raised
£2,526.00
+ £461.00 Gift Aid
Online donations
£2,526.00
Offline donations
£0.00

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