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Lee Piddington raised £2,779 from 114 supporters

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Closed 15/07/2017

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£2,779raised of £5,000 target by 114 supporters

    Weʼve raised £2,779 to Emilia's Fund to help fund mobility equipment, sensory room and toys.

    Torquay, United Kingdom
    Funded on Saturday, 15th July 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Emilia is 8 months old and was born with a severe neuromuscular disease giving her very weak muscle tone with progressive muscle waste over a short time, loss of mobility and motor function. The condition she is being treated for is Spinal Muscular Atrophy.

    This devastating condition is the leading cause of infant death in the UK with no treatments currently available.

    Emilia has been in Bristol Royal Children's Hospital for the past month and previous month in Torbay Hospital. When she was first taken into hospital she had a collapsed lung and pneumonia with her condition of weak muscles it was very hard to move the infection from her chest with repeat physiotherapy throughout the day and night. She currently spends 16 hours a day on a non invasive ventilator. She is unable to feed normally and is fed by Nasojejunal tube awaiting a Gastrostomy operation.

    Emilia is a very bright and smiley girl with beautiful big blues, her condition doesn't affect her mental development.

    Please help us meet our target no matter how small the contribution is, it all helps our princess.

    Updates

    8

    • Lee Piddington2 years ago
      Lee Piddington

      Lee Piddington

      2 years ago
      Update from the Page owner

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    • Lee Piddington2 years ago
      Lee Piddington

      Lee Piddington

      2 years ago

      We have had some amazing news regarding Spinraza. Emilia has finally been accepted on the trial for this life prolonging drug after 6 months of battling she will receive her first dose next week. She has started to absorb through her stomach once again and is currently 2/3rd of the way there! The complex team here are planning Emilia to go back to Torbay Hospital in the coming weeks if she continues progressing with feeding. We have finally got a new home in Brixham and are no longer homeless! Thanks to everyone donating and sharing 💜

      Update from the Page owner

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    • Lee Piddington2 years ago
      Lee Piddington

      Lee Piddington

      2 years ago

      Emilia has had her surgery last week unfortunately her stomach is still not absorbing and is requiring more surgery in July. We are still fighting to get the spinraza treatment for her in Bristol but are prepared to go anywhere to receive this treatment she desperately needs. We would like to thank our families and friends for all there support and raising money for her over the last few months.

      Update from the Page owner

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    • Lee Piddington2 years ago
      Lee Piddington

      Lee Piddington

      2 years ago

      Thank you for all donations. Emilia sadly had her right lung collapse over last weekend which sent us back to Bristols Paediatric Intensive Care Unit. The physio's, nurses, doctors and consultants have worked tirelessly to get her right lung inflated which has been a success. Emilia's neuromuscular condition gives her a very weak lungs and could collapse again at anytime. She is still awaiting her gastrostomy in may. We are looking at clinical trials to help her muscles with development and are fighting to get her the spinraza treatment.

      Update from the Page owner

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    2 years ago

    Lee Piddington started crowdfunding

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    Page last updated on: 7/15/2017 10.45

    Supporters

    114

    • Karen Paterson

      Karen Paterson

      Jul 15, 2017

      Sorry to hear this lee an kitsty.Not much.

      £10.00

    • Kathryn Walsh

      Kathryn Walsh

      Jul 8, 2017

      💖💝💖💝💖

      £10.00

    • Leisa Foley

      Leisa Foley

      Jul 6, 2017

      From the twins grace and Lilly

      £10.00

    • Mark  Lapicz

      Mark Lapicz

      Jul 6, 2017

      Much love from mark,Jess and Isabella xxxxxxxxx

      £100.00

    • Dave Robertd

      Dave Robertd

      Jul 5, 2017

      £20.00

    • V Wackett

      V Wackett

      Jul 5, 2017

      All the best Kirsty and family, you're an inspiration xx

    • Katie Reed

      Katie Reed

      Jul 5, 2017

      She's beautiful 😊 I hope you get the funds you need for your little family xxx

      £10.00

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    About Crowdfunding
    About the fundraiser
    Lee Piddington

    Lee Piddington

    Torquay, United Kingdom

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