Hi!
My name is INGA but everyone calls me FIGURKA.
I have a plan for my future. I have my dreams!
But there is something inside me – disease called Spinal Muscular Atrophy (SMA)*.
And it's trying to destroy my dreams.
The problem is I don't want to give up on them!
That's why I need to exercise (physiotherapy, hydrotherapy, massages etc.), I need to drive wheelchair which is light and fits my size, I need to use specialistic medical equipment, I will need to adapt my house according to my needs.

But most of all I want to get cured. New SMA drug (Spinraza) has just been approved in USA. Its price is 750 000 $ a year... This year it should be approved also in Europe. We would need unbelievably large amount of money then...

To make my dreams come true I need Your assistance and support.

Will you help me?

Visit
www.inga-figurka.pl
www.facebook.com/IngaFIGURKA

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* SMA is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic cause of death of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.

1 in 40 to 60 people is an SMA carrier, i.e. approximately 1.5 million people in the UK

1 in every 6,000 to 10,000 births is affected by SMA. At any one time, it is thought that there are between 2,000 and 2,500 children and adults in the UK living with SMA.

Progressive wasting (atrophy) of muscles can lead to the following:
- Atrophy in trunk muscles can lead to skeletal deformities (e.g. scoliosis)
- Atrophy in breathing muscles can lead to potentially fatal respiratory problems
- Atrophy in swallowing muscles can lead to difficulties in eating and drinking