Our brave little lion man lights up our lives with his fabulous smile and infectious giggle most days. So far in his short life he has been to the operating theatre seven times. After mystifying doctors for almost a year he was diagnosed with a really rare genetic condition kabuki syndrome which affects 1 in every 32,000 children. Iain has complex health needs he requires oxygen overnight, he is fed by a gastrostomy feeding tube as he can't safely swallow yet. He has a stoma as he was born without an anus, he has an operation in September to create one in the hope that by christmas time he will be able to go to the toilet normally. Iain will require complex open heart surgery in the next year or so as it stands the operation he requires has only been carried out on a handful of children around the world. As far as we know it has never been performed at Yorkhill. This fund is to enable us to be in a position to respond to any changes in Iains conditions and to ensure that we can get the best medical attention no matter where we have to go in the world. These funds will be held in a bank account which is controlled by Iains grandad and money will be used only when agreed by our trustees. We can't set up a proper charity because it will only benefit our precious boy, but as parents we cannot sit back and just do nothing. Anyone who fundraises can use this page to donate funds. We appreciate you taking the time to read a little bit of our boys story and thank you so very much for making a donation.