40%
£202raised of £500 target by 11 supporters

Weʼre raising £500 to HELP BARTUS WIN SMA1 (SPINAL MUSCULAR ATROPHY)

Location
Marston Moretaine, United Kingdom
Time left
44 days to go

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Crowdfunding is the new way to raise money for a personal cause on JustGiving.

Story

Hi my name is Ewa and I created this page to help little man raise money. This is Bartus story :
Hello, my name is Bart, I will be 2 on 9th December. I'm very cheerful and always smiling boy. Unfortunately 3 weeks after my birth I stopped moving. My parents took me to the hospital and after many days doctors find out what is wrong with me. My family heard devastating diagnosis. I have SMA Type1( spinal muscular atrophy) genetic disorder. I have begun my battle with time and SMA, battle for health and life.
I can't eat, I can't move, I can't do anything on my own. I'm slave in my own body. But you can help me donate money for my daily rehabilitation, medical equipment and most important thing CURE for SMA (nusinersen) hopefully will be available early next year. Please give me chance for a normal life.
Love,Bart

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Updates

4

  • Ewa Kieruj

    Ewa Kieruj

    15 days ago

    Ewa Kieruj

    Update from the Page owner

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  • Ewa Kieruj

    Ewa Kieruj

    15 days ago

    Ewa Kieruj

    Update from the Page owner

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  • Ewa Kieruj

    Ewa Kieruj

    15 days ago

    Ewa Kieruj

    Update from the Page owner

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17 days ago

Ewa Kieruj started crowdfunding

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Supporters

11

  • Diana Swistek

    Diana Swistek

    Dec 7, 2016

    £5.00

  • Ewa Tognon

    Ewa Tognon

    Dec 1, 2016

    £77.00

  • Ania Jankowska

    Ania Jankowska

    Nov 25, 2016

    £10.00

Ewa Kieruj

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About the fundraiser
Ewa Kieruj

Ewa Kieruj

Marston Moretaine, United Kingdom

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