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Agnes Zietkiewicz (Bartkowska) raised £1,134.6 from 27 supporters

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Closed 24/07/2019

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£1,134raised of £30,000 target by 27 supporters

    Weʼve raised £1,134 to Help Alex live a normal childhood

    Bristol
    Funded on Wednesday, 24th July 2019

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    Story

    In August 2014, when we found out that I’m pregnant, we were ecstatic. We were waiting for it for so, so long...

    It was even a greater surprise when we’ve been told that our 'bean' was not alone - there were two of them! We were having twins! Disbelief, joy, love, tears... We were over the moon!

    Unfortunately, our happiness was quickly washed away by some devastating news. During the routine checkup, doctors detected a number of congenital defects in one of our boys. They were suspecting heart defects, lung failure, urinary tract defects, digestive system defects and bone defects including ribcage, scull and feet and his survival chances were described as none...

    It’s hard to explain what a mother feels, finding out that her unborn child is dying... Knowing that even though she’s carrying two children she might not have a chance to meet either of them…

    I was in pieces… Our son was meant to die before he was born and all we could do was to pray that his little heart would continue to beat ...

    And it did! Despite all the prognosis and adversities, it was continuously beating – our son was fighting, and he was fighting hard!

    On the day when they were born, the delivery room went still, no one knew what to expect and we only heard one cry..

    I've never been so scared in my entire life ... I remember begging my husband to go and see him, so he wasn’t dying alone ... My husband froze in the middle of the room and the only thing he could mumble was "he is looking at me!" He was looking at him! He was alive, he was breathing and looking around!

    4 years later, Alex is with us and still fighting. Diagnoses made before birth sadly proved to be true and we still have issues that need to be addressed. Unfortunately they are past our financial abilities..

    I’ve never asked for anything from anyone for my entire life but unfortunately I need to put my ‘Little Miss Proud’ sticker into the pocket and ask you to help me, help my little warrior to win not one but three more battles in his life

    In the near future, Alex is due three more surgeries and a several months of foot therapy.

    First surgery is a two stage full reconstruction of the urethra that he was born without. In the past four years, he underwent 3 similar procedures that failed each time. Not being able to risk another failure, which at this point could be life threatening, we found Dr. Warren Snodgrass in Dallas PARC Urology Clinic - the inventor of treatment methods for pediatric patients similar to Alex, who is willing to take on his case.

    The procedure is extremely complicated and requires incredible skills and expertise of the surgeon, as the risk of unskillfully performed surgery at this point is between 60-80%, and the effects might be irreversible. In addition to the reconstructive surgeries, Alex will need around 80-100 sessions in the hyperbaric oxygen chamber to help with healing of grafts required for the reconstruction. Full treatment will take a year.

    If all goes well, Alex will also undergo a treatment for his "lazy leg" - a leg that ends with a special foot called Clubfoot.

    It is a deformity in which the child's foot is turned inward, often so severely that the bottom of the foot faces sideways or even upward. Initially, it is not painful, but if it is not properly treated, it will remain deformed and the child will not be able to walk normally.

    This is what happened to Alex – due to complexity of his case and all underlying conditions, his foot is still deformed at the age of 4 even though we went through the entire treatment protocol twice and seen 16 different medical professionals. We tried everything we could that is available on NHS and privately here in the UK and Europe Mainland with no luck. Finally, we found a doctor - Matthew Dobbs - in a St. Louis children's hospital that does wonders for children in a similar situation as Alex - and is willing to treat our son.

    The treatment will take nearly 3 months with the initial stage of 6 weeks, when Alex will undergo a series of bony manipulations, full leg plaster casts and Achilles tenotomy with bone stabilizations using Kirshner wires. After the procedure, he will be immobilized in a wheelchair for another 6 weeks in non-weight bearing casts. When all heals, he is going to wear day splints and nighttime braces for at least 2 years. He will also require a lot of physiotherapy to help him back on his feet independently.

    Unfortunately, the costs of all these procedures are huge, so huge that we can’t face them without your help..

    So here we are asking you amazing person to help this little man tackle these battles, so he can live a life he deserves and enjoy the childhood that has partly been taken away already..

    Thank you with all my heart!

    Agnes

    Updates

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    Agnes Zietkiewicz (Bartkowska)

    Updates appear here

      7 months ago

      Agnes Zietkiewicz (Bartkowska) started crowdfunding

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      Page last updated on: 6/17/2019 10.02

      Supporters

      27

      • Cara Walker

        Cara Walker

        Jun 17, 2019

        Well done on the run Richard! Cara

        £10.00

      • Anonymous

        Anonymous

        May 19, 2019

        £10.00

      • Louise Thursfield

        Louise Thursfield

        May 19, 2019

        Well done Richard, Louise

        £13.00

      • Julia Gibilaro

        Julia Gibilaro

        May 19, 2019

        £10.00

      • Joanne

        Joanne

        May 19, 2019

        Good luck with your little boys treatment.

        £10.00

      • Steve Worton

        Steve Worton

        May 19, 2019

        Well ran Rich!Sorry for the late donation, but guess every little bit helps.

        £13.10

      • Rebecca & Richard Matthews

        Rebecca & Richard Matthews

        May 19, 2019

        Doing what any mother would do, all the best xx

        £10.00

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      About Crowdfunding
      About the fundraiser
      Agnes Zietkiewicz (Bartkowska)

      Agnes Zietkiewicz (Bartkowska)

      Bristol

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