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Closed 26/10/2017

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£906raised of £4,000 target by 44 supporters

    Weʼve raised £906 to Help Baby Zanye He Has Been Diagnosed With A Rare Disease if treatment can not be funded the money will be used to ensure Zanye has it

    Newport, United Kingdom
    Funded on Thursday, 26th October 2017

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    Story

    Baby Zanye Has Been Diagnosed With Type1 SMA

    if treatment can not be funded the money will be used to ensure that zayne lives the rest of his days with anything he needs and to make memories with his parents and brother

    Spinal muscular atrophy (SMA) is a progressive genetic disorder that affects the nervous system and muscles, and is a very rare disease at that, found in an estimated 1 in every 6,000 to 1 in every 10,000 people. It is caused by a loss of specialized nerve cells, called lower motor neurons, leading to muscle weakness and muscle cell death.

    Lower motor neurons run from the spinal cord to muscle cells, making possible such muscle-controlled movements as crawling and walking, grasping or reaching, breathing and swallowing.

    There are 5 different types of SMA (type 0, 1, 2, 3, 4), classified accordingly to a person’s age at onset

    Classifying SMA according to its type is not rigid, and overlap and a spectrum of severity exist between each type.

    SMA Type 1 (Werdnig-Hoffmann disease)

    SMA type 1 is the most common form of the disease, accounting for an estimated 50% to 70% of all cases of childhood-onset SMA. It, too, is also an extremely severe form of the disease. (In general, the earlier SMA begins to manifest in a person, the more severe is the disease.)

    Onset occurs within the first six months of life, when these babies first start showing evidence of notable muscle weakness, reduced muscle tone, and movement deficiencies. These children are unable to sit without support.

    Overall, about 68% of children with SMA type 1 die before their second birthday and 82% die before their fourth, but survival in these infants is improving with improvements in respiratory and nutritional care.

    Updates

    1

    • Alana Davies11 months ago
      Alana Davies

      Alana Davies

      11 months ago

      Please Can we all club together for Zanye And His Family

      Update from the Page owner

      Share this update to help us raise more

    11 months ago

    Alana Davies started crowdfunding

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    Page last updated on: 10/21/2017 7:38 AM

    Supporters

    44

    • Lucy Henson

      Lucy Henson

      Oct 21, 2017

      Hope Baby Zayne has the send off he deserves! My heart is breaking for you all! Xxxxx

      £30.00

    • olivia hyden

      olivia hyden

      Oct 21, 2017

      ❤❤❤

      £5.00

    • Anonymous

      Anonymous

      Oct 17, 2017

      I recently had a little baby myself and reading this brought me to tears. I hope you raise all of the money you need to help your little boy!

      £10.00

    • Kristal Brown

      Kristal Brown

      Oct 17, 2017

      Sending love.

      £10.00

    • Chelsi Cleaver

      Chelsi Cleaver

      Oct 17, 2017

      My hearts goes out to you all 💔

      £5.00

    • Anonymous

      Anonymous

      Oct 16, 2017

      £15.00

    • Sarah Salmon

      Sarah Salmon

      Oct 9, 2017

      £10.00

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    About Crowdfunding
    About the fundraiser
    Alana Davies

    Alana Davies

    Newport, United Kingdom

    if treatment can not be funded the money will be used to ensure that zayne lives the rest of his days with anything he needs and to make memories with his parents and brother

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