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Alana Davies raised £906.07 from 44 supporters
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Closed 26/10/2017
Weʼve raised £906 to Help Baby Zanye He Has Been Diagnosed With A Rare Disease if treatment can not be funded the money will be used to ensure Zanye has it
- Newport, United Kingdom
- Funded on Thursday, 26th October 2017
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Story
Baby Zanye Has Been Diagnosed With Type1 SMA
if treatment can not be funded the money will be used to ensure that zayne lives the rest of his days with anything he needs and to make memories with his parents and brother
Spinal muscular atrophy (SMA) is a progressive genetic disorder that affects the nervous system and muscles, and is a very rare disease at that, found in an estimated 1 in every 6,000 to 1 in every 10,000 people. It is caused by a loss of specialized nerve cells, called lower motor neurons, leading to muscle weakness and muscle cell death.
Lower motor neurons run from the spinal cord to muscle cells, making possible such muscle-controlled movements as crawling and walking, grasping or reaching, breathing and swallowing.
There are 5 different types of SMA (type 0, 1, 2, 3, 4), classified accordingly to a person’s age at onset
Classifying SMA according to its type is not rigid, and overlap and a spectrum of severity exist between each type.
SMA Type 1 (Werdnig-Hoffmann disease)
SMA type 1 is the most common form of the disease, accounting for an estimated 50% to 70% of all cases of childhood-onset SMA. It, too, is also an extremely severe form of the disease. (In general, the earlier SMA begins to manifest in a person, the more severe is the disease.)
Onset occurs within the first six months of life, when these babies first start showing evidence of notable muscle weakness, reduced muscle tone, and movement deficiencies. These children are unable to sit without support.
Overall, about 68% of children with SMA type 1 die before their second birthday and 82% die before their fourth, but survival in these infants is improving with improvements in respiratory and nutritional care.
Updates
1
- 7 years ago
Alana Davies
7 years agoPlease Can we all club together for Zanye And His Family
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Supporters
44
Lucy Henson
Oct 21, 2017
Hope Baby Zayne has the send off he deserves! My heart is breaking for you all! Xxxxx
£30.00
olivia hyden
Oct 21, 2017
❤❤❤
£5.00
Anonymous
Oct 17, 2017
I recently had a little baby myself and reading this brought me to tears. I hope you raise all of the money you need to help your little boy!
£10.00
Kristal Brown
Oct 17, 2017
Sending love.
£10.00
Chelsi Cleaver
Oct 17, 2017
My hearts goes out to you all 💔
£5.00
Anonymous
Oct 16, 2017
£15.00
Sarah Salmon
Oct 9, 2017
£10.00
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About CrowdfundingAbout the fundraiser
Alana Davies
Newport, United Kingdom
if treatment can not be funded the money will be used to ensure that zayne lives the rest of his days with anything he needs and to make memories with his parents and brother