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amanda davies raised £67,294.5 from 2342 supporters
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Closed 27/04/2020
Weʼve raised £67,294 to pay for urgent treatment for a brave 8 year old girl who has been fighting a cancerous brain tumour since the age of 3.
- Funded on Monday, 27th April 2020
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Story
Lilwen is a gorgeous and funny 8 year old girl. She has been bravely fighting ependymoma a (cancerous Brain tumour), since the age of 3. Since being diagnosed she has gone through brutal brain surgeries, proton therapy, chemotherapy, but it still keeps coming back and she is now fighting this cruel disease for the third time.
The doctors have told the family that she has one last shot of treatment, as her brain and body has undergone too much treatment and damage. She will receive yet more brain surgery followed by a second lot of radiotherapy.
After numerous discussions with experts it has been agreed that the best option to protect her brain as much as possible is more proton therapy. The reasons for this include the fact the tumour is close to her brainstem, she has ready received radiotherapy to that area and proton is a gentler form of radiotherapy, ensuring healthy brain tissue is protected as much possible.
Unfortunately, the NHS are unable to fund proton therapy for Lilwen, only offering conventional radiotherapy which will cause harsh side effects which will affect the quality of Lilwen’s life. The family are looking at private proton options to ensure their daughter has the best treatment possible and the best chance in life.
Thank you for your support
Updates
9
- 4 years ago
amanda davies
4 years agoLilwen started treatment today. She’s so so so brave ❤️.
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- 4 years ago
amanda davies
4 years agoUnfortunately there have been some issues meaning Lilwen can’t start treatment tomorrow. We are waiting on some decisions on her plan from consultants in America but hoping it will start the end of the week/beginning of next . It’s so complex. We just want to start the treatment as we know the longer we leave it the more chance of another relapse. Ependymoma is a beast 💔💔
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- 4 years ago
amanda davies
4 years agoThank you everyone for your very kind donations - we are blown away! We have decided to close the just giving page as we think that the money raised plus some other ongoing fundraising events mean we should be ok to give our girl the best treatment ❤️. Lilwen will start proton 10th February for 5-6 weeks. As parents we had to make some tough decisions but we know that this is the right thing to do... so thank you for helping us xxxx
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amanda davies started crowdfunding
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Supporters
2342
Aled Davies
Apr 5, 2020
£10.00
Hodge Bank
Mar 16, 2020
Donation on behalf of everyone at Hodge Bank.
£5,000.00
Hodge Bank
Mar 12, 2020
Donation on Behalf or Hodge - Social committees Auction and raffle
£1,224.00
Anonymous
Feb 28, 2020
From all at Boom Cymru, who had a very tasty cake day!! Thinking of you all, meddwl amdanoch i chi. xxxx
£350.00
Anonymous
Feb 26, 2020
Brent & the Commercial Lending team
Feb 25, 2020
Best wishes for Lilwen’s treatment from Brent and the Commercial Lending team at Hodge.
£140.00
Anonymous
Feb 16, 2020
£20.00
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