Nathan is 3, my 4 yr old daughters best friend and neighbour. Emma-jo his mum noticed a lump on his forehead, Nathan was referred to LRI who confirmed he had a form of sagattal cranoynotosis....the type Nathan has is Pansytonosis where all the skull structure formed too early. Due to this Nathans brain is trying to grow but being suffocated, 20th Feb he will be heading Birmingham children's hospital for shunts but due to being 1 mile out mum and dad don't apply for travel costs plus only accommodation will be paid for for 1 parent, Nathan will require his skull breaking which will likely cause him to require facial reconstruction, both mum and dad want to stay with Nathan and take turns staying with him because he will be in for days and weeks on end, I know the family are struggling financially as Emma-jo had to give up work, please find it in your hearts to help