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£450raised of £750 target by 19 supporters

Weʼre raising £750 to Improve the quality of my Godson and Nephew Barney and his family's lives .

Ashford, UK
17 days to go

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Story

Im trying to complete a target of taking over one million steps between the start of June and end of Aug . Nothing mind blowing but a lot more steps then normal for my Godson and Nephew Barney to help and improve his life quality.

How do you possibly cope when you're told that your child has a rare brain disorder and will live a very short life, possibly to the age of 2 years old! - this is the devastating news Bev and Andy had to come to terms with after Barney became unwell at 6 months old and started having seizures. After much time in hospital, and every test, x-ray, scan going, he was diagnosed with rare life limiting condition called Lissencephaly. Which literally means smooth brain. He has a structural brain abnormality which can never be fixed with an operation. Barney will always suffer with seizures as part of this condition. He requires anti epileptic drugs and will do his whole life. He has severe global delay and needs help in all aspects of his life. Barney, Bev and Andy have recently had an extension to give him a wet room and lift up to his bedroom. The extension build was all at their own cost, then they received funding for his lift and wet room. This was a huge relief on them all as a family. Barney is now 8 years old! His seizures have recently become more complex and he has needed hospitalization 6 times already this year. He now has an NG tube for feeding and medication and has started a new Ketogenic diet which is extremely complex and requires precision in the preparation of every meal and medication. Bev has had to give up her job to become Barneys full time carer. Her and Andy devote their whole lives to giving Barney everything they can to enable him to live a life to the best of his ability. Their next major purchase is for a wheelchair adapted vehicle. Barney is very heavy and lifting him in and out of the car is becoming a huge challenge. His wheelchair is also no longer meeting his needs and is pointed out as being urgent by medical professionals at every meeting! but the next option of wheelchair is only possible with an adapted vehicle. To get a vehicle that meets his needs requires £10,000 over and above the motability allowance. This will put a huge financial strain on Bev and Andy, whilst they know it is essential for Barney, its not something they can just afford to purchase. Balancing his complex needs whilst considering financial burden is incredibly stressful and upsetting.

Barney is such a smiley happy boy despite everything he has to deal with, you fall in love with him when you meet him!. This is why I would like to raise money for him, to make his life that little bit easier, more comfortable and just to meet his growing needs which are a necessity.

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Updates

3

  • Andrew Evans1 month ago
    Andrew Evans

    Andrew Evans

    1 month ago
    Update from the Page owner

    Thank you so much to everyone that has donated so far , it’s really appreciated xx

    Share this update to help us raise more

  • Andrew Evans1 month ago
    Andrew Evans

    Andrew Evans

    1 month ago
    Update from the Page owner

    Share this update to help us raise more

  • Andrew Evans3 months ago
    Andrew Evans

    Andrew Evans

    3 months ago
    Update from the Page owner

    Share this update to help us raise more

3 months ago

Andrew Evans started crowdfunding

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Page last updated on: 8/2/2018 4:22 AM

Supporters

19

  • Teli

    Teli

    Aug 2, 2018

    £10.00

  • GEOAmey

    GEOAmey

    Jul 11, 2018

    £100.00

  • Anonymous

    Anonymous

    Jun 28, 2018

    £25.00

  • Dawn Rolph

    Dawn Rolph

    Jun 7, 2018

    Hope it's going well Andy. Only a small donation but hope it helps xx

    £10.00

  • Anonymous

    Anonymous

    Jun 2, 2018

    £10.00

  • Mandy Hearn

    Mandy Hearn

    May 26, 2018

    Good luck with reaching your target Andy. Anyone who knows Bev and Andy know that they are the most dedicated parents and always give their gorgeous Barney the best possible care and opportunities Xx

    £10.00

  • Anonymous

    Anonymous

    May 17, 2018

    Good luck with the fundraising I hope you meet the target.

    £10.00

Andrew Evans

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About the fundraiser
Andrew Evans

Andrew Evans

Ashford, UK

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