Weʼre raising £2,195 to help me purchase a folding electric wheelchair.
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.
The page owner is responsible for the distribution of funds raised.
Hi, my name is Arran and I was born with a rare disability called Multiple Epiphyseal Dysplasia (M.E.D) that affects around 11 out of 1 million people (I'm just blessed I guess...). It is also known as Fairbanks Disease and Perthes Disease. Multiple epiphyseal dysplasia (MED) is a rare, inherited, skeletal dysplasia caused by a malformation of the growing ends of the long bones. A skeletal dysplasia is a condition of abnormal bone growth or development. The key features of MED are mild-to-moderate short stature and painful joints. It affects both males and females equally and onset is usually during childhood or early adolescence, with most cases diagnosed between the ages of 2 and 10 years.
Below: Left non M.E.D hip X-Ray - Right M.E.D hip X-Ray
I inherited the disability from my mum who has gone on to have both hips and shoulder replaced which offered limited pain relief. I've been struggling/coping with my condition since the age of 3. It started with my legs getting tired after walking and needing push chairs and wheelchairs throughout my childhood along with numerous routine hospital visits. Although I knew I was different growing up with my misshaped limbs I never let this stop me from leading an active life and only resorting to using my wheelchair when absolutely needed. I've been raised with a clouded judgement of what being a wheelchair user means due to the way my mum was mistreated in her chair and so I vowed I wouldn’t use my chair again.
Throughout adolescence I grinned and bared the pain and pretended I was ‘normal’ despite bullies pointed out the obvious waddle in my walk or twisted limbs. It wasn’t until I started an art course at university that I began to embrace my disability and even went on the do multiple projects about it.
Below are some images of the projects I completed surrounding my disability. They started off quite dark to reflect my attitudes at the time towards my condition the progress to are more positive outlook.
Now at the age of 26 I have had multiple cortisone injections in my hips and have been diagnosed with osteoporosis and the early onset of arthritis with no hope of relief until I can get joint replacements at the earliest age of 40. I am finding myself incapable of doing most basic tasks like bending down without fear of my hip locking, performing household chores without having to rest after 2 minutes, unable to walk short distances without a hobble, shower without a seat and now needing a stairlift to climb the stairs. All of this resulted in me having to quit university in my second year which has left me feeling very depressed and unable to leave the house regularly with little to no social life.
I currently have a self propelled wheelchair that I’m no longer able to use as my elbows won’t allow me to push myself and the only wheelchair I have been offered is one where I am pushed. I would like to raise £2,195 to purchase a folding electric wheelchair . This will give me freedom to leave the house more, socialise, explore life and my hopes of becoming a primary school teacher.
I’m not on social media so I don’t really know what to expect from this but I just hope I can be released from this mental and physical prison i’ve found myself in.
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About the fundraiser
Hi, I'm Arran and I have Multiple Epiphyseal Dysplasia and due to lack of funds I am unable to purchase a folding electric wheelchair which will hopefully lift my depression and help me pursue my aspiration to study to become a teacher.