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Closed 05/11/2018

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£19,780raised of £19,000 target by 231 supporters

    Weʼve raised £19,780 to help fund Robert's operation

    St Helier, Jersey
    Funded on Monday, 5th November 2018

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    Story

    Help for Robert/ Pomoc dla Roberta

    Our son Robert is 10 years old. For many years we have been looking for answers what is the reason of his problems with speech, hearing, memory, sight, reduced muscle tone, motor coordination and imapaired feeling of his body.Recently we have also discovered bruising around his mouth indicating problems with blood circulation.

    Recently taken MRIs of his head and whole spine have given us answers what the root of his problems is.

    Based on this Robert has been diagnosed with Arnold-Chairi Malformation, type I. This means lowering of the cerebellum tonsils into the spinal canal what causes abnormal stretching of the spinal cord and also circulatory disorder of blood and cerebrospinal fluid.

    Pressure on the spinal cord leads to dying of spinal nerve cells and forming of cysts.Other further implications are the loss of power in the limbs, severe headaches, speech and vision disorders, motor coordination deterioration, can also cause apnoea and death.The lowering of the cerebellum tonsils is caused by abnormal ligament called Filum Terminale connecting spinal cord with spine.

    If not treated this disease will progress further.

    We are after consultation with specialist doctors from Institute Chiari & Siringomielia & Escoliosis in Barcelona, Spain.A chance for Robert is a costly operation (sectioning of the filum terminale) in order to eliminate the root cause and halt the progress of the disease.

    We ask for help to finance cost of operation and we will be grateful for any donation to help our only son.

    Robert is a talented, shy boy who beautifully draws and loves music.We believe that the operation will change his life and will allow him to develop normally .

    Artur Toczyski & Malgorzata Toczyska

    ************************************************************************************Nasz syn Robert ma 10 lat . Przez wiele lat szukalismy odpowiedzi na pytanie o powody problemow naszego dziecka z mowa, sluchem, pamiecia, wzrokiem, obnizonym napieciem miesniowym, koordynacja ruchowa i zaburzonym czuciem wlasnego ciala. Niedawno pojawilo sie rowniez zasinienie wokol ust, swiadczace o klopotach z krazeniem.

    Ostatnio wykonane rezonansy magnetyczne glowy i calego kregoslupa przyniosly w koncu odpowiedz na pytanie co dolega naszemu dziecku.

    Na podstawie tych badan zostala u niego zdiagnozowana malformacja Arnolda Chiarego typu 1. Choroba ta polega na obnizeniu migdalkow mozdzku do kanalu rdzenia kregowego, co powoduje ucisk rdzenia i zaburzenia w przeplywie krwi i plynu mozgowo-rdzeniowego. Ucisk rdzenia prowadzi do obumierania komorek nerwowych rdzenia i tworzenia sie cyst. Skutkiem tego jest utrata wladzy w konczynach ,ogromne bole glowy, zaburzenia mowy, widzenia, koordynacji ruchowej, moze rowniez prowadzic do bezdechow i smierci.

    Obnizanie migdalkow mozdzku jest spowodowane napieciem tzw.wiezadla filum laczacego rdzen kregowy z kregoslupem. Choroba ta bez interwencji chirurgicznej postepuje.

    Jestesmy po konsultacji ze specjalistami z Instytutu Chiari& Siringomielia & Escoliosis w Barcelonie, ktory specjalizuje sie w leczeniu tej choroby. Szansa dla Roberta jest kosztowna operacja polegajaca na przecieciu nici koncowej rdzenia(tzw. filum terminale).Powoduje to usuniecie napiecia w rdzeniu kregowym i przywrocenie normalnego krazenia krwi i plynu mozgowo-rdzeniowego.

    Prosimy z calego serca o pomoc w sfinansowaniu kosztow operacji . dziekujemy za kazda wplate, jako ze na szali jest zdrowie naszego jedynego dziecka.

    Robert jest utalentowanym, niesmialym chlopcem ktory pieknie rysuje i interesuje sie muzyka.Wierzymy ze ta operacja odmieni jego zycie i da mu sznase na normalny rozwoj.

    Artur i Malgorzata Toczyscy

    Updates

    10

    • Artur Toczyski4 months ago
      Artur Toczyski

      Artur Toczyski

      4 months ago

      Hello Robert had an operation as planned on 20 November. All went fine. We are very grafeful for your help. It would not be possible without your donations. God bless you all. Gosia and Artur Kochani Robert mial operacje 20 Listopada. Wszystko przebieglo dobrze. To wszystko dzieki Waszym wplatom. Niech Bog Wam blogoslawi za pomoc. Gosia i Artur

      Share this update to help us raise more

    • Artur Toczyski5 months ago
      Artur Toczyski

      Artur Toczyski

      5 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Artur Toczyski5 months ago
      Artur Toczyski

      Artur Toczyski

      5 months ago
      Update from the Page owner

      Share this update to help us raise more

    6 months ago

    Artur Toczyski started crowdfunding

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    Page last updated on: 12/1/2018 00.28

    Supporters

    231

    • Dani Jewell

      Dani Jewell

      Nov 2, 2018

      £10.00

    • Santander Jersey

      Santander Jersey

      Nov 2, 2018

      MATE, WE'VE HIT TARGET........Best of luck with the operation

      £1,170.00

    • K

      K

      Nov 1, 2018

      £20.00

    • Steve Seviour

      Steve Seviour

      Nov 1, 2018

      £40.00

    • Anonymous

      Anonymous

      Oct 31, 2018

      £80.00

    • Agnieszka Dudys

      Agnieszka Dudys

      Oct 31, 2018

      Powodzenia Gosia,😀

      £30.00

    • Lord Jersey

      Lord Jersey

      Oct 31, 2018

      I wish you the best of luck in a successful operation and recovery.

      £1,500.00

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    About Crowdfunding
    About the fundraiser
    Artur Toczyski

    Artur Toczyski

    St Helier, Jersey

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