So..... Our Ben 28yrs old, the brother, the clown, the career lad, the annoying ratbag, the uncle, the Daddy to Jacob age 2.5, the Son, the footballer, the clever-arse, one of the lads, the annoying BMW driver. Our Ben.

Wilsons Disease-a rare genetic disease (1:33,000) which is an accumulation of copper in the body got hold of Ben in his brain. We have watched over the last 18months his personality and behaviour change and now his motor skills and learnt how debilitating this is. We have a great doctor who specializes in WD and our neurologist is now considered to be a "specialist in neuro wilson's" . Not many other doctors know much. It's hard. WD is cruel, seriously debilitating and different in every patient as we have been told. Not one Wilson patient is the same. Ben's tremors have minimised which is a relief, the dystonia has hit him hard but we can see small improvments. Ben now has a feeding tube, but this is helping get lots of calories back into him (3,900 a day!), he has lost just under 5stone. Ben is a fighter he has shaken of phneaumonia, dispersed those nasty blood clots and is fighting. We don't know what is coming next or when he will turn a corner or maybe it is going to be a long bend to get him back on the road. We have seen our Ben get worse before better, which is common and is the nature of the chelating drug penicillamine which he has to take and also the nature of the disease. Ben has been in hospital since December 2016 and remains. We are hopeful now medication has settled and he is more stable that a move to rehab is not too far away.

Many friends have done some amazing fundraising over the last year and over the last few weeks we have been asked many a times if we still have the Crowdfunding site so we have managed to re-activate it. All donations raised will help Ben in his treatment, recovery and care. This could be neuro physio, oxygen chamber, holistic medicines, additional care, and any other help we may find we need along the way.

Ben has often liked a flutter and this is one gamble that we know he is going to WIN!

Any monies not used will be given to the charities that help Ben along the way. Thank you for reading and please feel free to share this page.

THANK YOU ALL FOR YOUR CONTINUED SUPPORT - WE REALLY DO APPRECIATE IT.