Ok guys I need your help please I have 3 granddaughters and I would like you to meet Lilly and Ebony. Lilly is 6 years old and has the black hair bow and Ebony has the white one and they both suffer from cystic fibrosis.
Ebony is 9 years old suffers the most and is in and out of hospital her lung has collapsed a few times and has had to be rushed in to hospital.
She has what is called a plug that as formed in her lung. She can not gain weight and never feels like eating and will be going back into hospital within the next two weeks to have a feeding tube fitted. They have both been refused life saving medication that is on trial in America as it's to expensive.
There is a mattress that vibrates and helps keep lungs clear whilst sleeping and a jacket that they can wear that also vibrates to help keep the lungs fluid free. The jackets are about £7000 each and again they have been refused these as the NHS will not pay for them so I'm going to try and raise £5000 to put towardsthe equipment .This will help change their lives and will help them lead a fuller longer life I have helped others raise money and raised money myself in the past for the children's hospital and the helipad. Now it's my turn to ask for help for my beautiful granddaughters.
Thank you in advance from me and my family.