Weʼve raised £100 to raise funds for The Aarskog Foundation
- Billericay, United Kingdom
- Funded on Sunday, 24th September 2017
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The page owner is responsible for the distribution of funds raised.
My friends nephew was diagnosed with the incredibly rare chromosome disorder, Aarskog Syndrome last year. The Aarskog Foundation, the charity which supports those affected by Aarskog Syndrome and their families, is in its infancy and would appreciate any support that you are able to offer. The charity's work and support is ongoing xxx
- 10 months ago
Beverley Seedsman10 months ago
So the easy bit is done. The walk was loads of fun & the journey thru London along the Thames was full of interesting sights, sounds, tourists & the hustle & bustle of the City. But now that is over, I have to remember that Aarskog Syndrome still remains and the many who suffer are fraught with ongoing life changing problems. Aarskog affects sufferers physically, emotionally & mentally & this charity aims to help families recognise the genetic disorder in their loved one & to get the help they need. I hope you are able to help.
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Beverley Seedsman started crowdfunding
Leave a message of support
Sep 15, 2017
Thank you Nicci for your donation! xx
Sep 14, 2017
Well done Bev! Hope all went well xx
Sep 7, 2017
Good luck Bev xx
Sep 7, 2017
🚶♀️this walking lady looks tired, you'll be great!
Sep 7, 2017
Walk fast ♥️
Aug 30, 2017
A lovely walk for such a good cause x
Lyndsey, ian and bump
Aug 10, 2017
Good luck Bev. All charities need support so it's good to see a smaller one getting what they need
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About the fundraiser
Billericay, United Kingdom
On the 9th September I will be taking part in The Thames Bridge Trek with Team Aarskog. A 15.5 mile walk over 16 of Londons iconic bridges. Any support that you are able to give me would be much appreciated by me and the Foundation xxx
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