Weʼve raised £100 to To raise funds for Bardet Biedl Syndrome UK which is a rare genetic disease which affects 1 in every 100,000 babies born
- Funded on Friday, 25th May 2018
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My name is Bob Hanley and I work for Larkins' Alehouse as their Bar manager. Two of our owners Julie and Kevin have two daughters with Bardet Biedl Syndrome, which s rare genetic disease which affects 1 in every 100,000 babies. The main parts of this condition are: visual impairment leading to blindness, kidney ormalities, learning difficulties, co ordination problems, hormone issues, obesity, and many other health issues may occur. After working with this family and learning more about their daughters i wanted to support this good cause.
To help this cause I am planning to do a Skydive whilst on holiday in Mauritius. Mixing holiday with raising funds. Please help me raise at least £500 for this worthy charity BBS UK who rely solely on fundraising.
- 2 years ago
Bob Hanley2 years ago
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Apr 28, 2018
Best of luck
Apr 27, 2018
Helen and John
Feb 21, 2018
Very brave of you Bob! I think you should persuade Sam to join you!!
Jan 25, 2018
Go Bob! Xx
Jan 25, 2018
Awesome! Go Bob. Love it when people do something to support others.
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