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Bob Hanley raised £100 from 5 supporters

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Closed 25/05/2018

0%
£100
raised of £500 target by 5 supporters

    Weʼve raised £100 to To raise funds for Bardet Biedl Syndrome UK which is a rare genetic disease which affects 1 in every 100,000 babies born

    Funded on Friday, 25th May 2018

    Don't have time to donate right now?

    Story

    My name is Bob Hanley and I work for Larkins' Alehouse as their Bar manager. Two of our owners Julie and Kevin have two daughters with Bardet Biedl Syndrome, which s rare genetic disease which affects 1 in every 100,000 babies. The main parts of this condition are: visual impairment leading to blindness, kidney ormalities, learning difficulties, co ordination problems, hormone issues, obesity, and many other health issues may occur. After working with this family and learning more about their daughters i wanted to support this good cause.

    To help this cause I am planning to do a Skydive whilst on holiday in Mauritius. Mixing holiday with raising funds. Please help me raise at least £500 for this worthy charity BBS UK who rely solely on fundraising.

    Mamy thanks

    Updates

    1

    • Bob  Hanley6 years ago
      Bob  Hanley

      Bob Hanley

      6 years ago
      Update from the Page owner

      Share this update to help us raise more

    6 years ago

    Bob Hanley started crowdfunding

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    Page last updated on: 4/28/2018 22.05

    Supporters

    5

    • Noreen Oakes

      Noreen Oakes

      Apr 28, 2018

      Best of luck

      £10.00

    • emma Turnbull

      emma Turnbull

      Apr 27, 2018

      Good Luck

      £10.00

    • Helen and John

      Helen and John

      Feb 21, 2018

      Very brave of you Bob! I think you should persuade Sam to join you!!

      £50.00

    • Bev Walker

      Bev Walker

      Jan 25, 2018

      Go Bob! Xx

      £20.00

    • Domino

      Domino

      Jan 25, 2018

      Awesome! Go Bob. Love it when people do something to support others.

      £10.00

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    Bob  Hanley

    Bob Hanley

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