Rupert was born with extremly rare condtion and the life expectacy is around 1-4 years ruperts just turnt 5 he currently has covid and our local hosptial had done everything thing they could and to give rupert the best chance was sedate him him and put him on a ventaltor after a few hours of being in intensive care we got told by the doctors hes on the max everthing they couldnt do anything else n to expect the worse in the next 24hrs we are on day 4 theres not a massive improvment but a little bit ruperts telling me hes fighting and not ready to go anywhere we are hoping to raise some money to help with the cost of hotels and living in london because of covid the hosptial accomadation and ronald mcdonald house arnt allowing children i have 2 other children that need there mummy as well and home is 2hrs away this is the most deverstating time everyonr that knows me knows ruperts my whole world and i do everything for him and he has the best life with his family making the best memories