I've raised £5000 to pay for surgery not available on the NHS for the treatment of lipedema/lipoedema

Organised by Candice Hunter
0%
Donations cannot currently be made to this page
Health and medical

Story

My name in Candice, I'm 31 and originally from South Africa. I suffer from a medical condition called lipedema/lipoedema - a fat disorder that affects around 11% of the female population. The NHS doesn't currently fund the lymph-sparing liposuction I need to treat this disease, with each operation costing around £5k. Left untreated, lipedema can result in a total loss of mobility.

In November 2017, I was featured on Dr Christian Will See You now (season 2, episode 2) - something I did to spread awareness of lipedema, and also to get some help. I was incredibly blessed to be offered 2 of the surgeries I need in order to treat my condition. I had my first surgery on 1 December 2017, with 6 liters of diseased fat removed from my upper and inner thighs. The change to my mobility has already been astounding! I have my second surgery planned for the end of this month.

I'm affected from my waist down to my ankles, as well as my full arms, tummy and back - I have 2 of my surgeries covered, but I'm battling to come up with the funds for the rest - I would still need another 4 or more surgeries. My legs would require another 1-2 surgeries, arms 1-2 surgeries, back, stomach and hips - so at this stage it's difficult to guess who many surgeries as the amount removed each time varies. At £5k per surgery - I'm sure you can imagine how this would be almost impossible to self fund! Sadly, many ladies are in the same position.

On top of surgey costs, I would also need to cover multiple sessions of MLD (manual lymphatic drainage) at £70 a session - 2 times a week for the first 2-3 week post operatively, and then once a week for a further 6-8 weeks. I lose money while in recovery as I'm unable to work- my first surgery resulted in 2 weeks of recovering at home. The costs are staggering, and frankly unmanageable. I've been saving up since April 2017, and I still don't have enough saved to cover just 1 surgery - the condition is progressive so it cannot wait another 5 years to continue treatment.

A bit of my story:

Before coming to the UK at the age of 19, I was VERY active - enjoying things like athletics, judo, kickboxing, swimming, bike riding etc. After a very stressful first year in the UK, I gained 20 pounds in 1 month- with no changes to my diet or exercise. I was tested for diabetes and thyroid, which both came back clean. For the next 10 years I would try every diet and exercise regime I could - weight watchers, slimming world, jane plan- you name it, I tried it. My weight continued to increase. As my weight went up, my mobility went down - even simple exercise like walking would results in injury.

In April 2017, I started something called fasciablasting, and in my before photos, I noticed swelling under my knees that clearly wasn't normal! I went to the GP, who suspected lymphedema - bloods came back normal. At this stage, my GP blew me off again- telling me to call back in a month. I started doing my own research and came across lipedema/lipoedema. I gathered all the info I could, went back to my GP, who confirmed it was lipedema and that there's very little they can do on the NHS.

This is when I started looking into funding my surgeries, and also when I was contacted to feature on Dr Christian Will See You Now.

About lipedema:

* Lipedema doesn't respond to traditional diet and exercise - you cannot starve lipedema.

* Lipedema is a painful and progressive condition - usually driven by hormones and inflammation.

* Often misdiagnosed as lymphedema or obesity - unlike lymphedema, lipedema doesn't affect the hands or feet, and is a build up of abnormal fat and fluid, and unlike obesity- lipedema doesn't respond to traditional diet or exercise.

* Around 11% of the female population is affected, and only around 5% of GP's are aware of the condition - which is often only diagnosed in the later stages.

Any help would be appreciated! Any excess funds will go towards researching lipedema and helping my fellow sufferers.

Help Candice Hunter

Sharing this cause with your network could help raise up to 5x more in donations. Select a platform to make it happen:

You can also help by sharing this link on:

About fundraiser

Candice Hunter
Organiser

Donation summary

Total
£0.00