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£2,738raised of £2,500 target by 125 supporters

Weʼre raising £2,500 to To help fund vital medical equipment

Darwen Lancashire
17 days to go

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Story

We are raising funds to purchase vital medical equipment for our daughter Ivy.

Ivy was born on the 23rd of January 2018 and shortly after was admitted to ICU at Manchester Childrens Hospital. She was soon diagnosed with a rare genetic metabolic disorder called Propionic Acidemia.

Her condition is a metabolic disorder resulting in her body not being able to break down proteins in food.

For Ivy this means a life consisting of multiple hospital stays and daily medications and being fed by stomach tube on a 3 hourly basis day and night for the rest of her life. She also has to be careful in catching any bugs and viruses as this can result in her body going into crisis.

These attacks result in extremely high levels of ammonia in her blood which can cause swelling on the brain and damage to her nervous system and can lead to mental and physical disabilities. Since Ivy was diagnosed she has rarely gone longer than a few weeks before having an attack and a stay in hospital and emergency transfers to Manchester Childrens Hospital.

Recently on the 22nd of December she suffered a severe reaction to an unknown bug or virus which resulted in her being admitted to hospital and suffering focal seizures, stopping breathing twice and resuscitated both times, she was put in an induced coma and ventilated before being transported by a specialist team of nurses and doctors to ICU in Manchester. She is now awaiting surgery to have a device fitted in her chest to help access to administer drugs and fluids more easily, This resulted in her spending her 1st xmas and new year in hospital but will hopefully make up for this.

We are now trying to fund a defibrillator and respiratory monitor and extra sensors to help keep her monitored during nights as now she has had this severe reaction to a virus this could happen again.

Throughout all this Ivy has remained happy and smiley and has made us so proud with her strength and courage even though she has had the toughest 1st year.

Philippa and I would be grateful for any donations no matter how small to help keep our little princess healthy and safe.

Thanks

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Updates

3

  • Carl Reed9 days ago
    Carl Reed

    Carl Reed

    9 days ago

    Hi, thanks for everyone’s generosity anything we receive above our total target will be used to provide anything needed for Ivy’s regular hospital stays and some extra bits of equipment for her room to keep her well. All 3 of us are blown away by the kindness we have received Thanks a million xx

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  • Carl Reed13 days ago
    Carl Reed

    Carl Reed

    13 days ago

    Thanks again for all the generosity so far it means a lot to us as a family xx

    Update from the Page owner

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  • Carl Reed13 days ago
    Carl Reed

    Carl Reed

    13 days ago
    Update from the Page owner

    Share this update to help us raise more

14 days ago

Carl Reed started crowdfunding

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Page last updated on: 1/21/2019 22.13

Supporters

125

  • Pamela and Andrew Ingham

    Pamela and Andrew Ingham

    Jan 21, 2019

    Sending love and best wishes x

    £20.00

  • David Dutton

    David Dutton

    Jan 20, 2019

    Keep strong. Love to your family.

    £10.00

  • Katrina and Karl

    Katrina and Karl

    Jan 18, 2019

    All the best Ivy! 💖

    £20.00

  • Anonymous

    Anonymous

    Jan 17, 2019

    very best wishes

  • Steph Hacking

    Steph Hacking

    Jan 17, 2019

    I hope you are able to get her everything she needs to stay strong and healthy. Having a rare metabolic disorder myself I wanted to show my support. She is lucky to have you both as parents 💜

    £20.00

  • Jackie Scholey

    Jackie Scholey

    Jan 16, 2019

    Lots of love to you, Pip and little Ivy Xx

    £20.00

  • Rebecca Nixon

    Rebecca Nixon

    Jan 16, 2019

    Sending you all lots of love, Ivy is such a brave little girl 💕 xxx

    £10.00

Carl Reed

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About the fundraiser
Carl Reed

Carl Reed

Darwen Lancashire

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