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Cavernoma Society raised £195 from 5 supporters


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Closed 01/08/2019

raised of £1,000 target by 5 supporters

    Weʼve raised £195 to to support those affected by Cavernoma and enable research into the condition.

    Funded on Thursday, 1st August 2019

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    Your donations will help us to support those affected by cavernoma and enable vital research into the condition.

    The Cavernoma Society is a not-for-profit that has been set up by people with cavernoma to support and provide information and guidance to those affected by cavernoma. Cavernoma is a neurological condition which mainly occurs in the brain or spine. It’s a lesion made up of a cluster of abnormal blood vessels which can bleed, causing strokes, seizures, and other neurological deficits. As many as 1 in 200 people have this condition and often don‘t know about it until it causes problems. We are in the process of receiving our charity number and looking to fundraise so that we can do vital work in supporting those affected, as well as educating the medical professionals on what is considered a rare condition.

    According to NHS England, people with neurological conditions, such as cavernoma, have the lowest health-related quality of life of any long term condition. This is why we need vital funding to do research that could improve lives! - Founder of Cavernoma Society



    Cavernoma Society

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      5 years ago

      Cavernoma Society started crowdfunding

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      Page last updated on: 4/19/2019 09.50



      • Keran Huskinson

        Keran Huskinson

        Apr 19, 2019

        Keep strong! living with and being diagnosed with a cavernoma was an extremely scary time for me.. Support is needed. Xxx


      • Joanne Grady

        Joanne Grady

        Apr 19, 2019

        Great information sharing. Thank you so much.


      • Beata Baslyk

        Beata Baslyk

        Mar 15, 2019


      • Ultimate Reward

        Ultimate Reward

        Mar 15, 2019

        I’m very proud of my daughter,she’s one in a million and inspiration to me and I hope to many other people...Love Dad Xxx


      • Emma Christides

        Emma Christides

        Mar 12, 2019


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      Cavernoma Society

      Cavernoma Society

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