Weʼre raising £1,000 to to support those affected by Cavernoma and enable research into the condition.
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Your donations will help us to support those affected by cavernoma and enable vital research into the condition.
The Cavernoma Society is a not-for-profit that has been set up by people with cavernoma to support and provide information and guidance to those affected by cavernoma. Cavernoma is a neurological condition which mainly occurs in the brain or spine. It’s a lesion made up of a cluster of abnormal blood vessels which can bleed, causing strokes, seizures, and other neurological deficits. As many as 1 in 200 people have this condition and often don‘t know about it until it causes problems. We are in the process of receiving our charity number and looking to fundraise so that we can do vital work in supporting those affected, as well as educating the medical professionals on what is considered a rare condition.
According to NHS England, people with neurological conditions, such as cavernoma, have the lowest health-related quality of life of any long term condition. This is why we need vital funding to do research that could improve lives! - Founder of Cavernoma Society
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Cavernoma Society started crowdfunding
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Mar 15, 2019
Mar 15, 2019
I’m very proud of my daughter,she’s one in a million and inspiration to me and I hope to many other people...Love Dad Xxx
Mar 12, 2019
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