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£340raised of £300 target by 28 supporters

Weʼre raising £300 to Support families affected with the CHAMP1 gene mutation. To enable them to continue raising awareness of their rare community.

Stirling, United Kingdom

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

We are a very rare community. There are currently only 42 families in the world with a family member affected with the CHAMP1 gene mutation. In the UK there are only 4 CHAMPS. We are on a mission to raise awareness of our rare community and rely on the support of family and friends. We need to get the word out there to the Rare Disease network. Our website is a point of contact for newly diagnosed families to reach out to the CHAMP community. We have running costs to enable the website to stay up and running. Some members of our community are hoping to use some of the funds to source materials that displays information on CHAMP1 for upcoming events.

Your support would allow us to continue doing these things. Please spread the word. If you can donate a CHAMP£1 and all your friends were to do the same we're sure we could reach our target.

Thank you for all your support!

www.champ1gene.com

#champ£1 #champ1superheros #champ1genemutation

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Updates

8

  • CHAMP1 Patient Support Group 23 days ago
    CHAMP1 Patient Support Group

    CHAMP1 Patient Support Group

    23 days ago
    Update from the Page owner

    We can't thank everyone enough for helping us. This helps us keep our website running and acts as a point of contact for newly diagnosed families. Thank you so much if you've donated 💙💙

    Share this update to help us raise more

  • CHAMP1 Patient Support Group 25 days ago
    CHAMP1 Patient Support Group

    CHAMP1 Patient Support Group

    25 days ago
    Update from the Page owner

    Share this update to help us raise more

  • CHAMP1 Patient Support Group 25 days ago
    CHAMP1 Patient Support Group

    CHAMP1 Patient Support Group

    25 days ago
    Update from the Page owner

    This is amazing! Almost there! Thank you so much for your support 💙 #champ1superheros

    Share this update to help us raise more

1 month ago

CHAMP1 Patient Support Group started crowdfunding

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Page last updated on: 9/1/2018 11:44 AM

Supporters

28

  • Mhari Bradley

    Mhari Bradley

    Sep 1, 2018

    Its not much but something to help all the champ families and their wee champs xxx

    £10.00

  • Margaret King

    Margaret King

    Aug 31, 2018

    £20.00

  • Louise Lafferty

    Louise Lafferty

    Aug 30, 2018

    £5.00

  • Nicola Mcculloch

    Nicola Mcculloch

    Aug 30, 2018

    Well done sorry it's not muchX

    £5.00

  • Lauren Lafferty

    Lauren Lafferty

    Aug 29, 2018

    £2.00

  • Gail Barilka

    Gail Barilka

    Aug 29, 2018

    £20.00

  • Paul Zimpelmann

    Paul Zimpelmann

    Aug 29, 2018

    £15.00

CHAMP1 Patient Support Group

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About the fundraiser
CHAMP1 Patient Support Group

CHAMP1 Patient Support Group

Stirling, United Kingdom

We are a Patient Support Group who have a family member affected with the CHAMP1 gene mutation. There are only 42 families in the world with this condition.

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