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CHAMP1 Patient Support Group raised £340 from 28 supporters

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Closed 21/12/2018

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£340raised of £300 target by 28 supporters

    Weʼve raised £340 to Support families affected with the CHAMP1 gene mutation. To enable them to continue raising awareness of their rare community.

    Stirling, United Kingdom
    Funded on Friday, 21st December 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    We are a very rare community. There are currently only 42 families in the world with a family member affected with the CHAMP1 gene mutation. In the UK there are only 4 CHAMPS. We are on a mission to raise awareness of our rare community and rely on the support of family and friends. We need to get the word out there to the Rare Disease network. Our website is a point of contact for newly diagnosed families to reach out to the CHAMP community. We have running costs to enable the website to stay up and running. Some members of our community are hoping to use some of the funds to source materials that displays information on CHAMP1 for upcoming events.

    Your support would allow us to continue doing these things. Please spread the word. If you can donate a CHAMP£1 and all your friends were to do the same we're sure we could reach our target.

    Thank you for all your support!

    www.champ1gene.com

    #champ£1 #champ1superheros #champ1genemutation

    Updates

    8

    • CHAMP1 Patient Support Group 6 months ago
      CHAMP1 Patient Support Group

      CHAMP1 Patient Support Group

      6 months ago
      Update from the Page owner

      We can't thank everyone enough for helping us. This helps us keep our website running and acts as a point of contact for newly diagnosed families. Thank you so much if you've donated 💙💙

      Share this update to help us raise more

    • CHAMP1 Patient Support Group 6 months ago
      CHAMP1 Patient Support Group

      CHAMP1 Patient Support Group

      6 months ago
      Update from the Page owner

      Share this update to help us raise more

    • CHAMP1 Patient Support Group 6 months ago
      CHAMP1 Patient Support Group

      CHAMP1 Patient Support Group

      6 months ago
      Update from the Page owner

      This is amazing! Almost there! Thank you so much for your support 💙 #champ1superheros

      Share this update to help us raise more

    6 months ago

    CHAMP1 Patient Support Group started crowdfunding

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    Page last updated on: 9/1/2018 11.44

    Supporters

    28

    • Mhari Bradley

      Mhari Bradley

      Sep 1, 2018

      Its not much but something to help all the champ families and their wee champs xxx

      £10.00

    • Margaret King

      Margaret King

      Aug 31, 2018

      £20.00

    • Louise Lafferty

      Louise Lafferty

      Aug 30, 2018

      £5.00

    • Nicola Mcculloch

      Nicola Mcculloch

      Aug 30, 2018

      Well done sorry it's not muchX

      £5.00

    • Lauren Lafferty

      Lauren Lafferty

      Aug 29, 2018

      £2.00

    • Gail Barilka

      Gail Barilka

      Aug 29, 2018

      £20.00

    • Paul Zimpelmann

      Paul Zimpelmann

      Aug 29, 2018

      £15.00

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    About Crowdfunding
    About the fundraiser
    CHAMP1 Patient Support Group

    CHAMP1 Patient Support Group

    Stirling, United Kingdom

    We are a Patient Support Group who have a family member affected with the CHAMP1 gene mutation. There are only 42 families in the world with this condition.

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