Weʼre raising £5,000 to Help fund medical equipment for Digby, our two year son who was recently diagnosed with Duchenne Muscular Dystrophy (DMD)
- Deal, UK
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The page owner is responsible for the distribution of funds raised.
We want to savour the years our "cuddle monster" son Digby is physically able to hug us back & as so many of you have wanted to help in anyway you can, we're setting up this fundraising campaign.
Two-year-old Digby has a progressive and fatal muscle-wasting condition called Duchenne Muscular Dystrophy (DMD).
The disease almost exclusively affects boys due to a faulty dystrophin gene which causes muscles to break down, leading to paralysis and consequently a lifespan on average of approximately 20 years, but this can fluctuate either way.
News of his diagnosis last August was "totally and utterly devastating" for us but we're determined not to let the disease ravage our boy.
We want to do everything we can to help raise the awareness of this cruel disease, whilst starting to prepare for the challenges he will face in the not too distant future by purchasing medical equipment when needed, to help him lead as normal-a-life as possible - For as long as possible.
We’ve taken great pleasure watching Digby develop into the amazing boy he is today but now we must prepare ourselves for his steady decline.
The worst part is knowing that his struggles will increase and his body will begin to waste away and all the while it feels we are powerless to help.
We always wanted a quiet family life and have never felt comfortable asking for anything, but now is not the time to be proud.
Whilst we live in hope a cure will be found, we want to make the very most of Digby still being able to do the things which make him do the things we all love - His laugh out loud belly laughs, his slobbery kisses & the huge cuddles which follow!
Thank you for taking the time to read this. Without doubt, your thoughts, kind words & never ending offers of support have genuinely helped & continue to help us on a daily basis, trying to come to terms with Digby's illness.
Lisa & Steve
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Lisa Donnelly started crowdfunding