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Elaine Whybro raised £265 from 28 supporters

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Closed 27/08/2018

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£265raised of £200 target by 28 supporters

    Weʼve raised £265 to raise funds for Hope4Huné. Me, my sister Sharon Abell and friends Vicki Ashworth and Cath Owen will be walking up Snowdon on 9th June.

    Funded on Monday, 27th August 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    At 8 months old Huné Deandra Gascoigne, a beautiful, seemingly healthy little girl was diagnosed with Spinal Muscular Atrophy (SMA Type 1) a devastating genetic disease which is the biggest genetic killer of infants. A company called Biogen give a drug called spinraza which the NHS administer by lumbar puncture to Huné every 4 months. Huné’s illness is still life limiting and a cold could kill her however so far this drug has been a miracle, her family call it her muscle juice. She is progressing so well but sadly children with this condition often die from respiratory problems due to lack of muscle strength. Miracles can happen though and we aim to help just a tiny bit by raising money to help fund whatever specialist equipment is needed for little Huné!!!

    Updates

    2

    • Elaine Whybro8 months ago
      Elaine Whybro

      Elaine Whybro

      8 months ago

      Thankyou everyone for your support so far! Can't believe we've already raised £75.00 in such a short space of time! (Some money has been handed to me personally). Here is a photo of Hune In her Wizzi Bug - a powered wheelchair for toddlers-the kind of equipment which the money we raise can help fund. Thankyou!!!!xx

      Update from the Page owner

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    • Elaine Whybro8 months ago
      Elaine Whybro

      Elaine Whybro

      8 months ago
      Update from the Page owner

      Share this update to help us raise more

    8 months ago

    Elaine Whybro started crowdfunding

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    Page last updated on: 6/22/2018 12:29 PM

    Supporters

    28

    • Anonymous

      Anonymous

      Jun 22, 2018

      Thank you Lorraine Whitehead for your kind donation!

    • Anonymous

      Anonymous

      Jun 13, 2018

      £2.00

    • Sharon Abell

      Sharon Abell

      Jun 13, 2018

      Thanks so much for your support Michelle, Julie and Jackie x

    • Anonymous

      Anonymous

      Jun 11, 2018

      Thanks for your donation John Edwards!

      £5.00

    • Lorraine Strachan

      Lorraine Strachan

      Jun 11, 2018

      Well Done to you all. A great cause and personal achievement.xx

      £10.00

    • Anonymous

      Anonymous

      Jun 11, 2018

      Thanks Adrian and Lynsey for your donation x

    • lidia quinlan

      lidia quinlan

      Jun 9, 2018

      Well done guys! xx

      £20.00

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    Elaine Whybro

    Elaine Whybro

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