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£265raised of £200 target by 28 supporters

Weʼre raising £200 to raise funds for Hope4Huné. Me, my sister Sharon Abell and friends Vicki Ashworth and Cath Owen will be walking up Snowdon on 9th June.

12 days to go

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Story

At 8 months old Huné Deandra Gascoigne, a beautiful, seemingly healthy little girl was diagnosed with Spinal Muscular Atrophy (SMA Type 1) a devastating genetic disease which is the biggest genetic killer of infants. A company called Biogen give a drug called spinraza which the NHS administer by lumbar puncture to Huné every 4 months. Huné’s illness is still life limiting and a cold could kill her however so far this drug has been a miracle, her family call it her muscle juice. She is progressing so well but sadly children with this condition often die from respiratory problems due to lack of muscle strength. Miracles can happen though and we aim to help just a tiny bit by raising money to help fund whatever specialist equipment is needed for little Huné!!!

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Updates

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  • Elaine Whybro4 months ago
    Elaine Whybro

    Elaine Whybro

    4 months ago

    Thankyou everyone for your support so far! Can't believe we've already raised £75.00 in such a short space of time! (Some money has been handed to me personally). Here is a photo of Hune In her Wizzi Bug - a powered wheelchair for toddlers-the kind of equipment which the money we raise can help fund. Thankyou!!!!xx

    Update from the Page owner

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  • Elaine Whybro4 months ago
    Elaine Whybro

    Elaine Whybro

    4 months ago
    Update from the Page owner

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4 months ago

Elaine Whybro started crowdfunding

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Page last updated on: 6/22/2018 12:29 PM

Supporters

28

  • Anonymous

    Anonymous

    Jun 22, 2018

    Thank you Lorraine Whitehead for your kind donation!

  • Anonymous

    Anonymous

    Jun 13, 2018

    £2.00

  • Sharon Abell

    Sharon Abell

    Jun 13, 2018

    Thanks so much for your support Michelle, Julie and Jackie x

  • Anonymous

    Anonymous

    Jun 11, 2018

    Thanks for your donation John Edwards!

    £5.00

  • Lorraine Strachan

    Lorraine Strachan

    Jun 11, 2018

    Well Done to you all. A great cause and personal achievement.xx

    £10.00

  • Anonymous

    Anonymous

    Jun 11, 2018

    Thanks Adrian and Lynsey for your donation x

  • lidia quinlan

    lidia quinlan

    Jun 9, 2018

    Well done guys! xx

    £20.00

Elaine Whybro

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Elaine Whybro

Elaine Whybro

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