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Sam Townley raised £2,357 from 51 supporters
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Closed 25/12/2018
Weʼve raised £2,357 to Emies DOC Band
- Southport, UK
- Funded on Tuesday, 25th December 2018
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Story
We are asking for you’re help to help our 11 month old Emie receive the treatment she needs.
Since Emie was born she has had problems with weak neck muscles and has received regular physio to try to correct this. However, recently she has been diagnosed as having PLAGIOCEPHALY and BROCHYCEPHALY
Plagiocephaly –“Flat Head Syndrome” – is a relatively common condition where an infant develops a flat spot on the back or on the side of the head. As a baby’s skull is soft pressure from everyday surfaces eg. a mattress or car seat can cause mis-shaping. Emie’s weak neck muscles have contributed to this. Brochycephaly means that her head is abnormally taller and wider than it should be and she has a sloping forehead. Babies with both these conditions are commonly affected by a neck condition called TORTICELLIS, which causes the head to tilt and/or turn to one side which is very evident in Emie.
Thankfully there is a treatment option for her offered by a private clinic Cranial Technologies (founded in 1986) which is dedicated solely to treating infants with Plagiocephaly. At the first appointment Emie would have a detailed 3D computer image of her head taken and would then be fitted with a DOC Band – a custom made cranial helmet – the only device supported by clinical studies and over 25 years of documented outcomes. Once the band has been fitted she needs to return to the clinic once every 2 weeks to have the band adjusted to ensure it is doing its job.
Emie is now 11 months old and still struggling to sit up tall or maintain her balace for any length of time. Her weak neck will not allow her to lay on her tummy for long as it is uncomforable for her.
As a family we live in Malta and the problem is the nearest clinic to us is in Barcelona and the cost of the treatment is 4000 euro’s with about the same amount needed to cover travel expenses, so a total cost of around 8000 euro’s.
As Emie’s mummy and daddy we are desperate to ensure that she receives this treatment so she can progress and achieve the milestones like other children of her age. We want to ensure that the future for little Emie is bright. To do this though we are going to have to appeal to the generosity of family, friends and strangers.
If you are willing to help Emie please donate generously so that we can get Emie treated as soon as possible as time is running out for her. Emie must have this treatment before her 2nd birthday as her skull will be fully formed by then.
Any amount, no matter how small would be greatly appreciated to us, thankyou so much for reading our story.
Updates
2
- 6 years ago
Sam Townley
6 years agoWould just like to say thank you for everyone's support, we found a private clinic in Manchester called Technology in Motion. We went there for the original sizing for a TIM Band and then went back again 2 weeks later to collect the Band. Emie is doing great with it and has really made us so proud. We have to go back in two more weeks to have her TIM Band adjusted, then back again in December. Here is a photo of Emie in her TIM Band... Lots of love Sam, Nick Amelia & Emie xxx
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- 6 years ago
Sam Townley
6 years agoWould just like to thank everyone who has donated for Emie so far, we are so grateful, you’re support means the world to us. We still have a long way to go but are hopeful we can reach our target so Emie can get fitted for her DOC BAND very soon. We have been in contact with a specialist, Emie's treatment would need to begin before she is 14 Months old. If everyone could please keep sharing, Thanks again x
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Sam Townley started crowdfunding
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Supporters
51
Val
Nov 1, 2018
Glad to help in a small way. X
£10.00
Mr & Mrs Bretherton
Oct 26, 2018
£40.00
jeanne mcdonald
Oct 12, 2018
£10.00
Mel Bedingfield
Oct 5, 2018
Hi, just a little something to help you on your way. Wish you all the best. Love Mel, Romeo and kiki xxx
£20.00
Annabel Collins
Oct 4, 2018
All our love. Annabel, Lily and Maddy. Best wishes Emie. Xxx
£30.00
Rebecca Parker
Oct 1, 2018
Sorry it’s not much x love Becky and Emma x
£50.00
Elaine Kane
Sep 28, 2018
Hope all goes well for your lovely little girl xxx
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