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Mia Reville-Roche raised £115 from 9 supporters
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Closed 06/08/2018
Weʼve raised £115 to Help Jenny, Florence and Riccardo make some amazing memories ✨
- Manchester, UK
- Funded on Monday, 6th August 2018
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Story
On Wednesday 1st August I will be doing a shark dive alongside my dad- with no cage!! 🦈🦈. I am using this as an opportunity to raise awareness for GM1 Gangliosidosis and to also request sponsors for the dive! I am wanting to raise money for Jenny, Florence and Riccardo; whether it be for home renovations to make their lives easier with Florence’s changing needs, to fund any medical expenses or even just to make some amazing family memoricrawlbabble, Florence has a life expectancy of 10 years old.
Florence was diagnosed with late infantile GM1 back in late 2016. Florence is now 4 years old and is possibly the most mischievous little girl I’ve ever met! Since Florence’s diagnosis there have been so many people brought together by Florence and her story who have fundraised to help her and her amazing family on this journey.
GM1 is a very rare disease and unfortunately at the minute has no cure available to humans. There has been research carried out but not enough funding to carry out human trials just yet- here’s hoping that Florence gets a place when they come around!! GM1 affects neurons in the brain and spinal cord which means that those who suffer- they lose abilities to walk, talk and swallow and can sometimes result in seizures but there is still no cure.
To follow Florence’s journey her Facebook page is ‘fundraising for Florence’ and for more information on GM1 please head to http://curegm1.org. 💗
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Supporters
9
Thu Hà Nguyễn
Aug 5, 2018
£10.00
Victoria Heap
Aug 2, 2018
£10.00
Bui Thach Thao
Aug 1, 2018
Have great time with sharks xx
£10.00
Cheryl Reville
Aug 1, 2018
Good luck 😬 🦈 xx
£10.00
Lucy Walsh
Aug 1, 2018
Have fun Mia! You're very brave 😂💜
£5.00
Tina West
Jul 28, 2018
Good luck Mia !!! Brave lady :) x x x
£10.00
Catherine keeley
Jul 28, 2018
Fantastic thing you are doing, good luck and enjoy the experience xxx
£10.00
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