Hi everyone!

Really hoping youll be able to help as little or as much as you possibly can.

This is Ava. Ava is a beautiful bonnie little tot who was diagnosed with a rare genetic disorder called SMA type 1 (the worst type of SMA) back in December 2016.

Since her diagnosis her condition has meant her and her mom have had MANY elongated trips to Stoke PICU ward and is currently on there.

Ava had to spend her first birthday ventilated and on the ward.

Her mommy has told me she desperately needs to have a cough assist machine and the NHS are unable to help her. These machines are £3000 EACH but would make a huge difference to her health meanjng less time in hospital and more time at home spending the precious time she has with her family whom adore her.

The cough assist machine helps ava to cough up secretions from her lungs. She has regular suction and often requires oxygen at home to help her breathe but it is vital that she gets this machine!
Any secretions on her lungs means there is a high chance she will develope an infection, pneumonia or collapsed lungs.

Avas mum was told she wouldnt make it past her first birthday.... the little warrior defied the doctors and is still here.thus equipment will elongate any time she has left with her family taking away alot of worry for her mummy also.

Please help me raise these funds urgently for this sweet smiling beauty!

INFORMATION ABOUT AVAS CONDITION FROM THE NHS WEBSITE:

Type 1 SMA

Children with type 1 SMA show symptoms in the first six months of life.

Babies with the condition:
have very weak and floppy arms and legs (hypotonia)
have problems moving, eating, breathing, and swallowing
are unable to raise their head or sit without support

Most babies with type 1 SMA die during the first few years of life, usually as a result of serious breathing difficulties.