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£110raised of £1,500 target by 7 supporters

Weʼre raising £1,500 to help fund an upright MRI Scan of my cervical spine and craniocervical junction at Medserena Upright MRI Centre in London.

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Story

I suffer from Joint Hypermobility, also known as Ehlers Danlos Syndrome, which affects the connective tissue in my body. My joints are more prone to injury and over stretching which causes pain and joint instability. I can suffer painful dislocations in many of my joints throughout the day and night and when I damage a joint it never fully recovers but becomes increasingly loose. This has meant I had to give up my career as a Sound Engineer: lifting and carrying heavy equipment at work was causing frequent injuries from which I have never fully recovered.

In the last 5 years my joints between my shoulders, neck and skull have become unstable and very painful and even coughing or sneezing gives me whiplash. The instability and pain in my neck/head has got so severe that I have to spend much of my time lying down, severely limiting my work and social life. I have seen the Hypermobility Clinic numerous times and also a Neurosurgeon who gave me a recumbent (lying down) MRI scan which did not identify the problem. I have requested they send me for an upright MRI with an EDS specialist and I have applied to my NHS trust for funding but they have turned me down claiming that an upright scan wouldn't show up anything if the recumbent MRI hasn't, which is simply untrue.

Having done lots of research into this condition, how it affects the craniocervical joint and who the experts are in the UK, I am certain an upright MRI at Medserena Centre will give me the answers I am looking for, and allow me to move on the next stage to get the treatment I need and get on with my life.

My £1500 fundraiser is to cover the cost of:

MRI scan and report £1350

Travel cost from Bristol to London for the scan £75.

5% Fee from Justgiving £75.

For information on the scan:

https://www.trulyopenmri.com/ehlers-danlos-syndrome-eds/

Thank you for your help.

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Georgie

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    3 months ago

    Georgie started crowdfunding

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    Page last updated on: 5/31/2018 7:56 PM

    Supporters

    7

    • Jane Morley

      Jane Morley

      May 31, 2018

      Hope you get to have this scan!! Lots of love xxx

      £30.00

    • Rik Haines

      Rik Haines

      May 31, 2018

      £10.00

    • Jasdeep Bhogal

      Jasdeep Bhogal

      May 30, 2018

      All the best

      £10.00

    • Indie, Luis and Kasia

      Indie, Luis and Kasia

      May 30, 2018

      Happy Birthday my Beautiful Friend!! I love you lots!!! XXX See you tomorrow XXX

      £20.00

    • Julian Craske

      Julian Craske

      May 26, 2018

      £10.00

    • Hannah Spooner

      Hannah Spooner

      May 26, 2018

      Good luck lovely xxxxx💜

      £20.00

    • Tracie Angiolini

      Tracie Angiolini

      May 25, 2018

      Good luck, hope you get what you need xxx

      £10.00

    Georgie

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    About the fundraiser
    Georgie

    Georgie

    Bristol, UK

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