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Closed 08/09/2018

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£36,150raised of £100,000 target by 45 supporters

    Weʼve raised £36,150 to Help fund my husbands' HSCT Treatment

    Haywards Heath, UK
    Funded on Saturday, 8th September 2018

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    Story

    Marcus, my husband, is an amazing man whose life has been turned upside-down by 4 letters: PPMS

    Marcus was diagnosed with Primary Progressive Multiple Sclerosis (PPMS) eleven years ago. PPMS is a chronic and lifelong disabling disease of the central nervous system (the brain and spinal cord). PPMS affects about 10-15% of people diagnosed with MS. MS is a very strange disease and everyone with it gets affected by it in different ways. Unfortunately, Marcus has a particularly aggressive form of MS which is typically characterised by a clear progressive decline affecting the balance, mobility, motor skills and brain.

    Anyone who knows Marcus will know him as an incredibly active, daredevil, adrenaline junkie whose passions include skiing, wakeboarding, hiking up mountains to jumping out of planes or diving off cliffs! Marcus was always the first one to wake up to say ‘What shall we do today?’.

    Marcus is a wonderful 43 year old father to his two children – Xavier 10 and Maya 5 years old.

    Unfortunately, PPMS is winning the battle and in the last two years his symptoms have progressed quite severely. Marcus can no longer lead an active ‘normal’ life - He can no longer run after his children, walk the children to school, ride a bike, run around the supermarket! ‘Normal’ daily activities are like climbing Mount Everest for him. Daily life is a constant struggle, he suffers from loss of balance, brain fog, foot drop, muscle spasms, fatigue and he is in constant pain. The brutal truth is PPMS will eventually mean Marcus will be bedbound and need 24/7 care. It has not been an easy journey for Marcus or us as a family to say the least. The children are becoming deeply affected by seeing their Papa struggle with the simple things in life.

    Marcus has always been a proud, strong and independent man. He has become depressed and withdrawn from those that love him most and his friends in order to deal with MS and the changes it has required in his life. Even with his strong and stubborn personality he feels defeated.

    There is some hope. The only effective treatment shown to halt the progression of MS is Hematopoietic Stem Cell Transplant (HSCT). This gruelling treatment uses high doses of chemotherapy to wipe out the immune system, and then the patients’ own bone marrow stem cells are transplanted back into their body to help rebuild the immune system without any memory of MS. Unfortunately, Marcus is not eligible for this treatment under the NHS (British health care system). Thankfully, he has been accepted to a specialist centre in Mexico this August, which will involve being there for 28 days. The treatment itself, the after care and the long recovery means that this all comes at a considerable cost.

    Those of you that know Marcus, know him as a genuine, loving, caring man who would do anything for anyone. More than anything, I would love it if my husband had the chance to beat this evil disease. HSCT is also a chance to give to Xavier and Maya; what they would do to see their papa with a smile and getting a break from such pain and despair.

    We are a private family but the time has come to put our pride to one side and ask for help – because without your collective financial help, there is no way for Marcus to have this treatment and no chance for his cruel disease to be halted. It is a huge sum we are asking for. This will cover the treatment in Mexico, flights, a 24/7 carer while he is there, plus the after-care when he returns to the UK which includes regular blood tests, 5 infusions of Rituxamab.

    Marcus’ recovery after the treatment is expected to be in some ways even more challenging than the treatment itself, including a long potential period of quarantine and considerable debilitating side effects lasting for roughly 12 months.

    There are no words to express our love and gratitude for all the emotional support we have received recently and we have been given amazing hope with HSCT, for Marcus, for the children and the family. Because of this, we are here today asking for your financial aid please. ‘Thank you’ doesn’t even come close and I am incredibly grateful you have spent the time to read this. Thank you for giving Marcus a chance to halt his MS and for giving my family hope for a new and happier life.

    With love from the bottom of my heart,

    Nina

    Updates

    3

    • n wright7 months ago
      n wright

      n wright

      7 months ago

      I’m really sorry but for some reason, we can’t figure out how to thank everyone individually on this platform. Very frustrating! Please can I ask that you all send your contact details to us to collate everyone in one place. As it’s a big job, we have a few peops helping: Hawaii crew : rohit or Avi Rosey: Gregory Debock everyone else: myself or nina Thank you and hopefully we won’t miss anyone this way. In the meantime, sorry if we are not in touch - we’re planning everything around the treatment. One love, Marcus

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    • n wright7 months ago
      n wright

      n wright

      7 months ago

      Hi Everyone! This is Marcus. I just wanted to jump in and thank everyone for such amazing support! We are in shock and at the same, I can’t tell you how much this means to all of us.

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    • n wright7 months ago
      n wright

      n wright

      7 months ago

      Hi everyone! We are absolutely overwhelmed with the support and generosity we have received. I’m sorry we are still learning to use this platform so havent quite figured out how to thank you individually. Thank you so very much xoxo

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    7 months ago

    n wright started crowdfunding

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    Page last updated on: 8/19/2018 8:59 PM

    Supporters

    45

    • Pete Dunlop

      Pete Dunlop

      Aug 19, 2018

      Marcus, you’re a hero of mine. I miss you enormously. I know you got this brother. Be strong. Everything crossed for your treatment and recovery. Much love brother. Pete

      £1,000.00

    • Anonymous

      Anonymous

      Jul 9, 2018

      Our thoughts are with you, dig deep, be strong and stay positive

      £500.00

    • Delphine  Perrella-Gabus

      Delphine Perrella-Gabus

      May 23, 2018

      Courage!!!!!

      £30.00

    • Rob Holt

      Rob Holt

      May 23, 2018

      Huge love and best wishes Marcus. Hoping the treatment gives you what you need.

    • Anonymous

      Anonymous

      May 20, 2018

      My very best wishes to you and your family.

    • Alejandro Villavicencio

      Alejandro Villavicencio

      May 20, 2018

      Hey Brother our hearts are with you and your family. Hope we can see you once recovered. Alejandro and Dorit

      £200.00

    • Anonymous

      Anonymous

      May 18, 2018

      Stay strong and be positive. Our prayers are with you.

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    About Crowdfunding
    About the fundraiser
    n wright

    n wright

    Haywards Heath, UK

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