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Hannah Johnston raised £1,452.5 from 48 supporters
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Closed 01/04/2021
Weʼve raised £1,452 to help fund Ocean Ward at Southampton hospital
- Funded on Thursday, 1st April 2021
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Story
Hi my name is Harrison i was born on the 12.9.2018
My mummy and daddy found out in january 2018 that i was going to be growing in my mummies tummy, over the moon they were but scared and nervous as i was about to change their lives
At my mummies 17 week scan, she saw me wriggling around happily kicking away, then suddenly my mummy found out information no parent should have to hear. They told her i had a problem with my heart and my mummy would need to be refered to Southampton hospital to have further scans.
When she saw DR Bharucha they confirmed i had the following:
Double outlet right ventricle
Right aortic arch
Atrioventricular septal defect
Left artrial isomerism
AVSD
VSD
Isomerism 1 in 10,000 babies have this i got unlucky but i do have 2 left lungs...
Unfortunately i would need a few operations in my life to correct this.
When my mummy gave birth to me on the 12.9.2018 she had a pretty traumatic birth, but having me in her arms made this worth while. We even manged to go home after a week as i was doing so well.
As the weeks went on i was going downhill, i was sleeping all the time which this may sound great but my mummy and daddy wanted to play and interact with me but i was too tired,
I gave my mummy a huge scare on the way to hospital one day i became unresponsive in my car seat, she was trying to wake me but i was blue and floppy she had to call 999...
The next 7 weeks i spent in hospital, had 3 surgeries, was ventilated 3 times due to pulmonary hypertension. i also suffered a peri arrest! (Part of my heart stopped) i gave my family a huge scare. My family even had to see my chest open
The 3rd operation worked they put a pa band on my pulmonary artery to control the amount of blood flow to my lungs. This should last until june time when i have my full operation.
My mummy and daddy spent the whole 7 weeks in hospital, i definately gave them grey hairs.
Overall at the moment i am due another operation in june hoping this is my last...
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Supporters
48
Anonymous
May 7, 2019
all the best Harrison
£10.00
Kevin Filsell
May 7, 2019
This is the money from the customer in the cab
£5.00
Shazza.
May 7, 2019
Wishing you and yours a speedy recovery to some sort of normality. xx
Ian Lambert
May 7, 2019
Keep fighting little fella
£10.00
Kevin Filsell
Apr 30, 2019
Best of luck from the bottom of my heart, and every thing crossed
£20.00
Graham Cullingford
Mar 30, 2019
Happy Christening!Looking forward to seeing you all later.Lots of love from Verity and Graham xx
£20.00
Julie Hill
Feb 24, 2019
🙏💕😍
£10.00
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Hannah Johnston
My name is Hannah i am Harrisons mummy, i appreciate all the donations so far. I really want to help ocean ward buy more equipment